Reddit Reddit reviews Vitamin B12 Deficiency in Clinical Practice: "Doctor, you gave me my life back!"

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1 Reddit comment about Vitamin B12 Deficiency in Clinical Practice: "Doctor, you gave me my life back!":

u/bigglesbilo ยท 4 pointsr/ehlersdanlos

I would urge anyone to get their active b12 levels tested. Not just their b12 levels. Their active b12. This shows whether you're converting it when it's in your system. I battled the symptoms of deficiency for almost a decade but was told it's all in my head as my levels were in the 2000s. 10 years later and a sympathetic private (I'm in the uk) doctor later when I'm on my last legs, and I pay for genetic testing on top of the active b12 test and bingo...I'm not able to convert b12 or folic acid. You can throw as much at me and I'll never convert it. So I have weekly injections now of the converted form and the improvements are impressive all round. Not a cure but we all know that any help is massively welcome in this battle. I suggest people read up on http://www.b12d.org/ and consider reading this Vitamin B12 Deficiency in Clinical Practice: "Doctor, you gave me my life back!" https://www.amazon.co.uk/dp/1090400810/ref=cm_sw_r_cp_apa_i_cRXtDbBCTRVMN (sorry don't know how to do fancy short links!).

I don't want anyone to suffer like I did. My specialist said most doctors don't understand it and even my prescribing doctor admits she would never have known. Take care everyone x

Edit: if you show to have this, don't let them tell you oral treatment works. It doesn't.