(Part 2) Best books about nervous system diseases according to redditors
We found 254 Reddit comments discussing the best books about nervous system diseases. We ranked the 68 resulting products by number of redditors who mentioned them. Here are the products ranked 21-40. You can also go back to the previous section.
When he gets a little older, I recommend this book. His verbal skills are probably very strong, and that book spells out very clearly how to deal with social situations of all types (which he struggles with.) There is probably a similar type of book for younger people, too.
An important thing to know is that people with Asperger's do generally want social interaction, but they have no idea how to behave. As a result, they have negative experiences in most of their social interactions and learn to avoid them. This can lead to a lot of feelings of loneliness and depression. It's important to nurture his social skills and teach him what is/isn't appropriate. Many social graces which are natural and obvious to everyone else may be very difficult for him to grasp.
One more thing; eye contact can be very hard and uncomfortable for people with Asperger's. If this is the case with your son, see if he can do eye contact through a mirror. Sometimes the extra level of separation can help, and gradually, he can learn normal eye contact.
Hope this helps!
Edit: This book on body language is another great one. He'll probably enjoy reading it, too. It's a good book for everyone to read, even those without Asperger's. Good luck!
Hi welcome-
I have cp and am almost 40. I have ataxic cp in all 4 limbs, 80% of those with cp have spastic. Ataxic and Spastic are types of cp. All my life, I classified my cp as moderate, but now, they're getting away from saying mild/moderate/severe and using a scale called Gross Motor Function Classification System (GMFCS). I would be level IV
If types and levels mean nothing to you or are confusing-don't worry that makes two of us! All my life various professionals have thrown around different labels or sub categories about me. While I found most or all of those therapists great and helpful, my type of cp-I've always been who cares.
I have a bachelors degree, am a publisher/author, and can am able to live alone. I walk short distances but mostly use a Manuel wheel chair. Since graduating college, I've worked sporadically but it's been a struggle to find and keep a job.
YES-there is absolutely hope for improvement! Your little girl is only 5mos. That is really too early to know how she'll do yet. It's certainly too early to 'close any doors.' Or say, she'll never.. All you know is if she's diagnosed w cp, her path will probably look a little different. It's ok, not to know 'what to do with that' and feel all sorts of ways, that's normal!
Most of us hit many childhood milestones, it just takes us longer. It is not too early to start 'working.' By that I mean your first goal should be to get her into early intervention for babies birth to three. Talk to your doctor about this-ask what is our quickest path into Early Intervention? What do I need to do to start? Contacting Easter Seals or your states Division of Developmental Disabilities (DDD) would also give you info on how to access Early Intervention services in your area.
Early intervention so helped me improve!! The other thing that really helped me sit, walk, talk etc was starting therapeutic horseback riding at age three! And, I loved it!
You got this! It will be OK! Take each day, year, challenge as it comes and know your little girl will amaze you in ways that you cannot even imagine.
' Below are all resources that I think are great to 'sorta get the lay of the land of cp..'
(if you want to try stuff in addition. Some things you may feel might be worth looking into, others you may feel won't help or don't sound credible.
Don't get to over whelmed, you do not have to do everything all at once. The period after diagnosis is hard enough-if you feel it's best to stick to early intervention, that's enough. Never feel you have to have your kiddo in 20 different therapies or you're failing as a parent-not so!! Do whatever works for you!)
A lot of experiences mirror my own, some contrast my experiences. Nonetheless, it gives lots of information/perspective. https://toniasays.blogspot.com/2017/08/parenting-kids-with-disabilities-what.html
Best to you and your family!
Audrey Craven
She is LOVELY. And courageous, having seen the gap in care and voice for migraine patients and then acting on it, first in Ireland and then growing that to all of Europe.
What I really get from her for us is a combined message. Understanding that we have a disease, and that it's difficult to live with- we need to learn to cut ourselves some slack, perhaps learn to say no, and how to take care of ourselves. But we also need to be willing to work. There's going to be some bootstrapping to live your life as well as possible. She advocates learning and really empowering yourself- so many things she shared were a combination of being proactive while acknowledging that it can be hard to to so, and to be kind to ourselves and take care of ourselves. She also advocates utilizing patient resources and organizations.
Migraine Association of Ireland
European Federation of Neurological Associations
European Headache Alliance
British Migraine Association
Migraine: Not Just Another Headache
Samaritans
https://www.amazon.com/Environmental-Genetic-Causes-Autism/dp/1510710868
Read this book about brain health: The Alzheimer's Solution: A Breakthrough Program to Prevent and Reverse the Symptoms of Cognitive Decline at Every Age https://www.amazon.com/dp/0062666479/ref=cm_sw_r_cp_apa_hFoQBbB829VG7
As far as less brain fog on keto, you might just have an intolerance to gluten, I sure do. Even though other people can eat it healthily, I have done an elimination diet and found it to cause lots of unwanted symptoms in me. Additionally, just choosing whole food carbs like sweet potatoes and other veggies makes me feel great, where i often feel crappy eating anything made of flour. Just something to think about.
If you want to stay with keto head over to r/veganketo. I personally did not feel my best doing keto, but all I care about is people staying vegan for the animal's and earth's sake. So do whatever makes you feel better.
If you go the wfpb route, be careful of cutting out too much fat to soon, that can make you snacky.
Good luck!
Also The Alzheimer's Solution.
You can use the physical play to help build up your relationship - Floor time is quite good for this: This book explains floortime quite well or you can Google "Floortime". There's another book called Giggle Time which gives ideas on developing physical play.
at Amazon
A Short History of Nearly Everything & Compass of Pleasure
Hey! This has been an insanely helpful book for me: https://www.amazon.com/dp/B077NRSV6B/ref=dp-kindle-redirect?_encoding=UTF8&btkr=1
if you haven't already, ya might wanna look at this book
I'm Still Here, A New Philosophy of Alzheimer's Care - John Zeisel, Ph.D. or the author's website, ImStillHere.org
he's been working with Alzheimer's patients for many years and says
memories are there - it's the access paths to those memories that are tangled
he said new access paths can be made through
patiently ... showing loved ones old photographs or have them listen to music they liked
I did this with a loved one and it worked
maybe you can try this with Mr. Monson and it'll help him
nobody deserves dementia/Alzheimer's - it is brutal, as I'm sure you know
Oh, I'm so sorry. There is a really good book called Learning to Speak Alzheimer's that has really practical information about living with someone with dementia. It might be helpful.
https://www.amazon.com/dp/B004IPPIO6/ref=dp-kindle-redirect?_encoding=UTF8&btkr=1
Yeah no problem. It took me a long time, working with my Doctor, to get medication right. I have a slow transit, basically the time it takes for items to digest and turn into #2. Sorry TMI, I know. Anyway, those of us with slow transit times see the amps build up in our system over time and actually causes the opposite effect of what they are supposed to do. For those of us with slow transit, less is more.
I highly reccomend this book: http://www.amazon.com/books/dp/1938467221
It goes into all of this type of stuff and gives you a good starting point to discuss issues with your doctor. It really helped me figure out my medications. My old doctor kept prescribing a higher dosage, because it wasn't working, but the reality was that it was just building up in my system to the point where it caused a lot of side effects. I read through this book, after getting completely frustrated with the lack of efficacy, then tested my transit time. Once I determined that I had slow transit, I cut my dosage down to a quarter of what I was taking. And voila, meds started working how they were supposed to without the side effects.
Good luck to you! Once you figure out the meds your ADHD life will improve dramatically. Mine sure did.
I'd HIGHLY recommend you read Dr. Stuart Shipko's book "Xanax Withdrawal". It's a very easy read and highly valuable to someone specifically coming off of xanax. Combine that with reading the Ashton Manual and you will have for yourself a very nice idea of what you'll have to look forward to coming off of xanax in the coming weeks/months/years. These two books together are some of the best knowledge on xanax/benzodiazepine withdrawal that I know of to date. If you happen to also struggle from anxiety/panic aside from the xanax, Dr. Stuart Shipko's book "Surviving Panic Disorder" is literally a panic disorder sufferer's bible. It's the best explanation for what panic disorder is and how to approach it that I've ever come across. Saved me in many ways to be informed:
https://www.amazon.com/Surviving-Panic-Disorder-What-Need/dp/1410787346
https://www.amazon.com/Xanax-Withdrawal-Stuart-Shipko-ebook/dp/B008H7XYNS
https://benzo.org.uk/manual/
Hey Soalian, I'll always be doing experiments. =) I just graduated and got a new job so I haven't had much time to write about them recently.
Dr. Bredesen's book just came out so I'm going through that and testing out his protocol. The End of Alzheimer's
Here's an article that summarizes an older version of his program. The protocol focuses on metabolic brain enhancement and synaptogenesis/synaptic maintenance which are two of the most important enhancement areas to focus on in my experience. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4221920/
Your condition can be related with fascia, dura mater or upper vertebras shifting due to your traumas.
So good chiropractitioner to the rescue.
And also this book might be helpful for you!
https://www.amazon.com/Brain-Fog-Mysteries-Functional-Throughout-ebook/dp/B0791LS77Y/ref=mp_s_a_1_1?ie=UTF8&qid=1538390239&sr=8-1&pi=AC_SX236_SY340_QL65&keywords=rothstein+book+fog
https://www.amazon.com/101-Accessible-Vacations-Wheelers-Walkers/dp/1932603433
The Environmental and Genetic Causes of Autism
Hi
I am in my 30's, grew up in the Philly area and have Moderate Ataxic cp. I have a bachelors, lived on my own at 18 and currently am an author and a consultant.
Early intervention is a great start! I also did therapeutic riding from 3 to 11, huge help! Riding really helped me reach all my early childhood milestones!! I also loved the water-swimming was really great for me
If you're going to CHOP, you may also want to contact AI DuPont. They have a huge CP program that's world renowned. When I was a baby, we started at CHOP, but by three, my mom said I am nevrer going there again with her. (Don't remember any of this) Our family really liked DuPont a lot more in terms of care and they made us feel like I was a child, not just a number for their research. In terms of distance, DuPont was 20 minutes farther but mom said it was an easier drive and parking was no issue at DuPont. So, despite it was farther, it was easier..
Now this was almost 40 years ago, CHOP, I am sure has changed. When I was in CHOP for three days at six months, they still had wards!!! Stuff has changed. I know DuPont has changed, but the same people still run the CP program, whom I love.
You may decide to stick with CHOP, everyone's different. But my parents doctor shopping, that -goes on the long list of things they did right!!
Just know it'll be ok! Most adults w cp wouldn't change it. Realize milestones will come, they may bee delayed but they're come!! Try to take the que from her as to if she wants to do things or not. For example, I went to 'regular' school from 2nd on. After the first year, I never wanted to do field day. I was, and still am, happy my parents let me stay home those days!!! Some adults with CP would disagree and say they're happy their parents made them do every thing just like a typical kid. This really has nothing to do with cp and how you feel one should parent. I think every child is different and should be listened to, not forced to do arbitrary things. That's just an example. Field day could be one of the highlights of your child's year!
You probably want your child to walk. That's Natural. I hope she does. Just know from an adults point of view, walking isn't important. Stress independence, and whatever mode of mobility that will facilitate that!!
PA is ranked top in schools and special ed. I have no idea what your daughter will need. Just know that everyone is different, don't rule anything out! Inclusion is great. But there are kids who do better in special ed settings, every student has their own best plan!! Just keep LRE in mind, students should always be placed in the least restrictive program that they would do well in. The reason why that's vague-is every student is so so so different in what's best for them! When I was preparing to transition to a therapy based pre-school program the district wanted me to go to a program for kids with a higher degree of physical disabilities. Mom fought to get me into a program that was designed for kids with communication delays, which was the right thing. Looking back, I am both glad that I started out in SPED, I am also glad in 4th grade that I started transitioning to REGED. Like many kids, middle school was really hard for me but high school got way better.
So School: take it as it comes, don't rule any option out, realize if something isn't working it can always be changed
The only thing my parents ever did-that I hated was force me to go to sleep away camp for kids with disabilities, awful. They did this twice, first when I was nine. I so wasn't ready, had never even slept at a friend's house yet. I only lasted three days. It was traumatic. And then, when I was almost 14, they made me go back. Everyone there treated me like I was four. It was traumatic. Now, other kids liked it-to me it felt like prison, just not for me. Being in the hospital was more fun.
My mom just always wanted me to make friends with others who were disabled and since I attended regular classes from sixth grade on, she always made special attempts, I always disliked this.. A friend is a friend-disability has zero to do with it!!
As far surgeries-buyer beware. I've had three as a child, all ortho/cp related. (at ages 11, 12 and 15) They really help some kids, but just expect if you do a surgery recovery will be harder/longer then you expect. And with CP surgery might set off other issues. I am not anti cp surgery for kids, just buyer beware
As far as government stuff: The ADA is a federal law that applies to everything, this basically makes businesses more accessible and ensures the same access to public accommodations. The two benefits that families may get is SSI and Medicaid. SSI is a monthly check to help with the child's expenses. Medicaid is government health insurance. Both these are means tested, meaning the parent(s) need to make under a certain amount to qualify. I didn't qualify for either until 18. As a teen I wish I had medicaid, they would have covered more then whatever private insurance I had through my dad's employer.
I want to say it'll be ok, you are awesome for trying to find out as much as you can! Take it as it comes and know every experience is unique!!
I will post some good links below-best to you and your family!
Cerebral Palsy: A Complete Guide for Caregiving (A Johns Hopkins Press Health Book)
https://www.amazon.com/Cerebral-Palsy-Complete-Caregiving-Hopkins/dp/0801883555/ref=mt_paperback?_encoding=UTF8&me=
(Good intro to cp, cause right after diagonosis-it can be a lot of new info or terms)
Ceebral Palsy Center: Nemours/Alfred I. duPont Hospital for Children
https://www.nemours.org/service/medical/cerebral-palsy-center.html
(Even if you don't go to DuPont their page has lots of helpful Youtube videos on cp)
http://reachingforthestars.org/
Karen Pape
http://www.karenpapemd.com/ (Dr. Pape has kind of different ideas than Freeman Miller, who was my doctor, nicest man ever, but never hurts to consider different schools of thought)
American Academy for Cerebral Palsy & Developmental Medicine (AACPDM)
http://www.aacpdm.org/
Alternative Therapies for CP
http://cpcare.org/treatments/alternative/
(Never to replace your docs or the tradition 3 therapies of OT/PT/Speech, but if you want to try stuff in addition. Some things you may feel might be worth looking into, others you may feel won't help or don't sound credible.
Don't get to over whelmed, you do not have to do everything all at once. The period after diagnosis is hard enough-if you feel it's best to stick to early intervention, that's enough. Do whatever works for you! And, never feel you have to have your kiddio in 20 different therapies or you're failing as a parent-not so!!)
Intensive Suit Therapy
https://oxfordrecoverycenter.com/suit-therapy/
Thorncroft Equestrian Center
http://thorncroft.org/
(again, if I had a toddler and was going to chose one 'alternative' therapy to add in, it would be ridding, so helped me)
Wrightslaw Special Education and Advocacy
http://wrightslaw.com/
(Lots of good info on how to navigate the school system and get what she's federally entitled to under IDEA, that's the federal law that grants us the right to equal access to a public education, even if she's never in SPED classes)
The Accidental Mind, by David Linden.
https://www.amazon.com/Accidental-Mind-Evolution-Memory-Dreams/dp/0674030583/ref=asap_bc?ie=UTF8
> With only physical brains, there are no subjects, there are only objects.
What do you mean? Our brains are capable of building a model of reality, creating abstract concepts for real world objects. Our brains are good at simulating agency, and ascribing agency to the models that exist in our mind. That ability is actually one of the reasons that human beings are superstitious, our brains are overactive when it comes to ascribing agency to things (including inanimate objects and processes).
Science has a pretty good understanding of where those types of things take place in the brain. There are years of experimentation on that type of stuff, a lot of it is available for you to read about online if you're curious. I recently read a book that talks about this type of stuff, if you're interested: https://www.amazon.com/Accidental-Mind-Evolution-Memory-Dreams/dp/0674030583/ref=sr_1_1?s=books&ie=UTF8&qid=1499716922&sr=1-1&keywords=the+accidental+mind
I read an unreleased copy of The Compass of Pleasure over the summer. Highly recommended.
If you are talking about your migraines triggering extreme feelings of isolation, I can't say I have that particular symptom, but I have gotten euphoria and extreme feelings of wellbeing for 10-30 minutes before I detect a visual aura.
Migraines can manifest in different ways in different people, at different points in their life. Oliver Sacks wrote a book on the subject. It's a fascinating read, and I recommend it to anyone who asks about migraines.
have you read this book? http://www.amazon.com/Migraine-Oliver-Sacks/dp/037570406X/ref=sr_1_1?ie=UTF8&qid=1325274528&sr=8-1
Sorry, that was a bit flippant. I'll note that despite that comment I have a lot of respect for South Korea's rapid industrialization and technological prowess.
In order to determine that "digital dementia" is a real phenomenon, we'd have to establish that:
a) those supposedly suffering from digital dementia have in fact suffered a decline in cognitive capacity
b) this decline has resulted from exposure to digital technology
This article doesn't provide enough details about the Korean studies to judge whether either a) or b) has been firmly established. Personally I'm more partial to Torkel Klingberg's model, according to which the exposure to modern technology is actually making us smarter, since having to handle so much information is providing significant mental stimulation. If we feel stupider this could just be an illusion created by the fact that demands on our cognitive abilities are increasing faster than our cognitive abilities are increasing in response to that stimulation.
Here's an interesting quote:
>For this invention will produce forgetfulness in the minds of those who learn to use it, because they will not practice their memory. Their trust in writing, produced by external characters which are no part of themselves, will discourage the use of their own memory within them. You have invented an elixir not of memory, but of reminding; and you offer your pupils the appearance of wisdom, not true wisdom, for they will read many things without instruction and will therefore seem [275b] to know many things, when they are for the most part ignorant and hard to get along with, since they are not wise, but only appear wise.
That's Socrates's critique of invention of writing.
And here's a good piece by Steven Pinker: http://www.nytimes.com/2010/06/11/opinion/11Pinker.html?_r=0
The book by Klingberg: The Overflowing Brain
Edit: I didn't see gluay's comment about Spitzer's work, I'll have to take a look at that
I like this book,
http://www.amazon.com/Overflowing-Brain-Information-Overload-Working/dp/0195372883
Some material about children development and filtering:
http://books.google.com/books?hl=de&lr=&id=FbeaTXALDo4C&oi=fnd&pg=PA117&dq=information+overload+children+development&ots=RX-A992xho&sig=lSgif1u-kRGW6Kp6LVWlv1zZ5XU#v=onepage&q=information%20overload%20children%20development&f=false
And a huge chunk I admittedly did not chew fully yet:
http://books.google.com/books?hl=de&lr=&id=IyCofOJKWCwC&oi=fnd&pg=PR11&dq=sensory+overload+children+development&ots=C--zUynlr1&sig=BUz3ktT8jzHbMt_Z1krLfLRMtks#v=onepage&q&f=false
Of interest re: mental disorders:
http://ajot.aotapress.net/content/55/4/416.abstract
http://schizophreniabulletin.oxfordjournals.org/content/11/3/397.short