Top products from r/ClotSurvivors
We found 26 product mentions on r/ClotSurvivors. We ranked the 18 resulting products by number of redditors who mentioned them. Here are the top 20.
1. CMS 50-DL Pulse Oximeter with Neck/Wrist cord
Sentiment score: 5
Number of reviews: 2
Accurate within +- 2%
2. Medical ID Rose Gold Stainless Open Heart Bracelet - Diabetes
Sentiment score: 0
Number of reviews: 1
Rose Gold Stainless Steel Tag & BraceletDIABETES Etched on top of TagFashionable, Durable, & Functional8" total Length (can be adjusted)PLEASE READ ALL DETAILS UNDER PRODUCT DESCRIPTION
3. Wearsafe Personal Emergency Response Tag Lifetime Edition - Immediate Panic Button - Medical Response Wearable - One Touch Security Alert System (Charcoal)
Sentiment score: 2
Number of reviews: 1
TRUSTED -- Named “top gadget of CES 2017” by Women’s Health and awarded a spot in Red Herring’s 2017 Top 100 List, Wearsafe is recognized for protecting thousands of people nationwide.NO SUBSCRIPTIONS & NO CONTRACT FEES -- Unlike other emergency devices, Wearsafe doesn’t have subscriptions...
4. HLTPRO 20-30 mmHg Compression Socks Women & Men - Compression Stockings for Running, Nurse, Flight, Travel
Sentiment score: 0
Number of reviews: 1
✅ TO BE FASHION LEADER: From a variaty of patterns collection, encourages you change your entire look by pairing these cute and colorful designs with dresses, denim and more. Add more fun and color to your life with those attractive compression socks. You'll be able to run further and faster witho...
5. Compression Socks Woman XWide Calf - Firm Gradient Support, Ankle and Arch Support. Knee High | Plus Size Premium Cotton Hosiery with padded soles | Black, Extra Wide Size
Sentiment score: 0
Number of reviews: 1
SIZE CHART in the 2nd PHOTO. Measure carefully, chose X-WIDE, or XX-Wide. Designed and Tested in USADo you feel the need to continually change positions because you feel discomfort in your legs?Want to get relief from tired achy feet and legs, and the painful stinging, burning, and heavy feeling?SEA...
6. Compression Socks - Medical Care Grade for Shin Splints, Calf and Leg Pain
Sentiment score: 1
Number of reviews: 1
SCIENTIFIC DESIGN - Knitted by professional Germany Medical grade machine, these compression socks are more durable, comfortable, denser, and better fitting, great for training, race, pregnancy, crossfit, and plantar fasciitis relief.GRADUATED COMPRESSION TECHNOLOGY- Graduated Compression provides t...
7. Santamedical Generation 2 OLED Fingertip Pulse Oximeter Oximetry Blood Oxygen Saturation Monitor with Batteries and Lanyard - Pink
Sentiment score: 0
Number of reviews: 1
NEWLY UPGRADED - Measures quick and precise pulse rate and SpO2 blood oxygen saturation of arterial hemoglobin levels.PRECISE AND RELIABLE - Quickly determine your SpO2 (blood oxygen saturation levels), Fast SpO2 readings, pulse measurements and display it conveniently on a large digital OLED displa...
8. WISLIFE Cut Resistant Gloves - Safety Gloves for Cutting, Cooking Gloves for Meat Cutting, Level 5 Protection, Food Grade Woodworking Gloves, 1 Pair (Large)
Sentiment score: -1
Number of reviews: 1
Protect Your Hand From Cuts And Scrapes - These cut resistant gloves are made of Dyneema, resistant to cut, being 4 times stronger than leather. WISLIFE’s gloves for glass meet standard EN388, level 5 cut resistance standard, protecting your hands from scrapes and cuts.Easy To Maintain And Keep Cl...
10. Futuro Therapeutic Knee Length Stocking for Men/Women, Helps Relieve Symptoms of Mild Spider Veins, Firm Compression, Open Toe/Heel, Large, Beige, 1 Count
Sentiment score: 0
Number of reviews: 1
Firm Compression (20-30 mm/Hg)Vein therapy helps relieve symptoms of moderate-to-severe varicose veins and ankle swellingIdeal for standing or sitting all day, traveling or active office workCan be used for supportive comfort during post-surgery recoveryOpen toe and heel have a smooth, comfortable f...
11. How to Stop Worrying and Start Living
Sentiment score: 1
Number of reviews: 1
Gallery Books
12. JOBST Activewear Compression Socks, 15-20 mmHg, Knee High, Large, Black
Sentiment score: 1
Number of reviews: 1
Compression socks that fit active lifestyles – for both men and womenDri-Release technology offers helps keep feet dry – with moisture-wicking, odor control and fast drying propertiesWide comfort knee band secures sock in placeCushioned foot, with seamless toe, provides all-day wearing comfortId...
13. Deluxe SM-110 Two Way Display Finger Pulse Oximeter with Carry Case and Neck/Wrist Cord
Sentiment score: 1
Number of reviews: 1
NEWLY UPGRADED - Newly Redesigned with major improvements made to the previous pulse oximeter model. NEW Two Way Display feature allows you to read in two different directions.PRECISE AND RELIABLE - Quickly determine your SpO2 (blood oxygen saturation levels), Fast SpO2 readings, pulse measurements ...
14. Futuro Revitalizing Trouser Socks for Women, Moderate Compression, Medium, Black
Sentiment score: 0
Number of reviews: 1
Moderate Compression (15-20 mm/Hg)Helps relieve symptoms of swelling, mild spider and varicose veinsIdeal for standing or sitting all day, traveling or active office workGraduated compression helps improve circulationGreat for business casual or weekend wear
15. Ames Walker AW Style 48 Sheer Support 20 30 Open Toe Thigh Highs w/Band Nude XL
Sentiment score: 1
Number of reviews: 1
[20-30 mmHg Firm Compression] Improve circulation to help relieve tired, achy and reduce mild varicosities and edema with Recommended compression! Graduated compression stockings are tightest at the ankle and generally decreases as it moves up the legs, helping you fight gravity.[Fashionable] These ...
16. ITA-MED Sheer Compression 23-30 mmHg Thigh High Stockings Varicose Vein Nurse Hose Socks for Women, H-80 X-Large Black
Sentiment score: 1
Number of reviews: 1
HIGHLY RECOMMENDED BY DOCTORS: To help treat blood clots, varicose veins and other venous disorders. Ideal during and after pregnancy and for people with cellulite problems. Improves blood circulation and helps alleviate pain.GRADUATED COMPRESSION Thigh Highs provide firmer support at the foot and a...
17. Santamedical Generation 2 Fingertip Pulse Oximeter Oximetry Blood Oxygen Saturation Monitor with Batteries and Lanyard
Sentiment score: 1
Number of reviews: 1
VERY ACCURATE READINGS - Our pulse oximeter has been clinically tested and consistently beat other pulse oximeter in terms of accuracy and reliability, it is found to be a fast and absolutely reliable gadget to use. It is ideal for the oxygen and pulse readings, and have a very small error margin.FA...
Hello! I had a PE 4 days after my 22nd birthday so I really sympathise with feeling like you have no time (i.e. life expectancy) and also the whole 'this is the rest of my life' thing. I ended up developing PTSD because the whole situation was a massive shock for me and I felt like my life as a competitive sportswoman was over.
The best thing you can do is find a therapist who specialises in trauma, people often think you can't get PTSD from medical emergencies but you 100% can. Overcoming Traumatic Stress (2nd ed.) was a book I found really helpful whilst waiting for therapy through the NHS. Please be patient with yourself, I know it can be frustrating to feel like you've changed as a person but I promise that one day you will feel like you've got your life back.
Finally, I would say to just be open and honest with the people who love you - PTSD and recovering from a PE is an absolute trip and surrounding yourself with people who have your best interests (who don't enable you) at heart is hugely beneficial. Good luck and I hope you're feeling better!
your issue isn't clotting, it's OCD and anxiety, and I don't know that we're the right people to help you with that. We can give you all the reassurances in the world but your OCD/anxiety will say "yeah but what about...". Have you tried posting in r/OCD or r/anxiety?
If you're not on hormonal birth control now and you don't have any genetic factors and you don't have other risk factors (as listed on the sidebar) you're unlikely to clot. your doctor felt you were well enough to come off anticoagulants.
you know what the symptoms of a PE are, and you know what they aren't. you remember what symptoms you experienced when you got your PE, that's what you need to watch for. you know that finger pain is not a symptom of a clot so remind yourself of that in a positive reassuring way. Remind yourself that you are okay, you are safe, and you know how to get help if anything does happen.
What some folks do is they get an inexpensive pulseox device to monitor their blood oxygen and reassure themselves they are getting enough oxygen.
At this point you probably have some PtSD from your experience and your therapist is the best person to help you work thru that along with your other anxiety disorders.
I do box breathing for anxiety, it can help with mild to moderate anxiety, I don't know if it helps panic. you might also benefit from a mind-body practice like yoga or t'ai chi or qigong. they are not a quick fix, it's something you have to practice regularly.
For what it's worth I have anxiety disorder as well, been dealing with it off and on most of my life. I do know it has a life of its own and does what it wants, logic be damned. I did a lot of medication, a lot of therapy, and do a lot of yoga and meditation. It still rears its ugly head now and again.
How scary! I'm so glad you are here. I had my PE a little over a year ago. Massive bilateral, no known cause (maybe birth control). I don't know what the future holds, so I can't tell you that the worst is over, but I can say that you are getting treatment, so bad things are very unlikely to happen right now. I'm guessing that your doctor will have you on anticoagulants for life. That can be both good and bad. Coping is hard. Research about clotting helps me a lot. Contributing to this board helps. You have every right to be scared. Fear is normal, especially at first. You have gone through something terrible. Trust me when I say that I really do understand. You may want to look into getting yourself a pulse ox for those times that you are afraid. you can check to see that your oxygen is ok. That you are really breathing. I know that has helped me. You may also want to look into genetic testing for your children. If they are factor V also, it would be good to know early. Your daughter is likely at least heterozygous (a carrier).
Did your doctors find any clots in your legs? Were you sick at all before this? You really will be ok. You have a loving family to support you through this. You will get better. Feel free to ask us any questions or make any comments you need to!
There are some smartphone apps out there which require the user to check-in every morning, otherwise the app will notify specific people that the user hasn't checked in that day. I can't really vouch for any, but I highly recommend looking into those as an option.
Here's one for iOS I've been using, since I live alone, have a dog, and there's a free version: https://apps.apple.com/us/app/snug-safety/id1122758716 edit: I just tested this the other day and it worked like a charm, texts were sent out about 15 minutes after the deadline.
 
This obviously won't help you help them immediately (an emergency beacon of some sort would be better in that case), but could help if they fail to wake up, or something like that. There are relatively cheap options for smartphone paired emergency buttons, like this one on Amazon: https://www.amazon.com/Wearsafe-Personal-Emergency-Response-Lifetime/dp/B07KPWT4TB/
> ..I think every little pain in my chest is a PE..
Get a [pulse oximeter] (http://www.amazon.com/Santamedical-Deluxe-Finger-Pulse-Oximeter/dp/B000ORVXPA/ref=sr_1_9?m=A8YXBQ7YB5YFQ&s=hpc&ie=UTF8&qid=1420598121&sr=1-9&keywords=santamedical+pulse+oximeter) and ask your hematologist what readings you should look out for, for example I've been advised to go to the ER if my oxygen saturation falls to 93% and has been accompanied by other symptoms.
32/F Currently on Pradaxa. Last July I survived a massive bi-lateral PE which also resulted in a pulmonary infarction, this was followed by a second smaller PE a week later. Having a finger pulse-ox gave me much needed peace of mind during the healing process.
Feel free to PM any questions or if you just want to chat/vent :)
I found out just over two years ago (February 2016) that I am heterozygous for FVL after having 2xDVT August 2015. I'm a lifer on warfarin. My hematologist has told me that if I end up in a less travel heavy job or a job that isn't overly sedentary, then there is a possibility that I could switch to an aspirin therapy. However, that is not likely. I haven't had too many negative side effects since going on warfarin (sensitive to cold, a bit of fatigue), so I have no interest for the time being in switching to a newer anticoagulant.
Link to the FVL resources via Stop The Clot/National Blood Clot Alliance: https://www.stoptheclot.org/factor-v-leiden.htm I share their links often since they were a great resource for me when I was initially diagnosed with clots and FVL. Everything else I could find targeted a much older demographic (I was 29 at initial diagnosis).
The book that I recommend pretty heavily for anxiety is How to Stop Worrying and Start Living by Dale Carnegie. The mass market paper back version is very very cost efficient ($3-ish), your local used book store probably has it for under $5, and your local library might have it as well. For a long time, I had a tendency to obsess over "What could happen" rather than focusing on what has happened and what is most likely to happen. That book helped me quite a bit. https://www.amazon.com/How-Stop-Worrying-Start-Living/dp/0671035975/ref=sr_1_1?ie=UTF8&qid=1525808063&sr=8-1&keywords=dale+carnegie+how+to+stop+worrying+and+start+living
In general, forwardseat nailed it.
So, for some perspective. After I was diagnosed, my Mom and older sister got checked. It turns out, they both have the same variation that I do. Care to guess who the only to have a clot is? (This guy). I'm the only male that we know of that has it. They were both on hormonal birth control for many years, and my sister's doctor had her switch to a non-hormonal option. Personally, I'm a former smoker. I smoked cigarettes (.5-1 pack a month) for around 2 years ten years prior to getting clots. Beyond that, I used to be an occasional cigar or pipe smoker (talking maybe 6 cigars per year, pipe once or twice a month). Now? I'm firmly a non-smoker. I miss pipes and cigars on the patio or while listening to a new album, but I can live without them.
Control your risk factors and pay attention to your body.
As far as how to cope if you end up with a clot, my best answer is one day at a time. You're ahead of the game now, since you're already researching clots and clotting disorders. When I had my diagnosis, I thought clots only impacted people that regularly took trans-Atlantic flights and the bedridden elderly...not 29 year old strength athletes. The most terrifying part was the unknown. However, then I stumbled onto StopTheClot.org and BloodClotRecovery.net . So, I learned more. The more I learned, the less anxious and terrified I was. Over time, I settled into a new normal...and my new normal is pretty amazing. I'm doing so much stuff that I never would have dreamed of. I'm finishing my degree (had an 8 year hiatus), applying to grad school, exploring new hobbies (photography & target shooting), trying new food, and traveling as much as my work schedule, and budget, will allow. So, take that trip, go to that concert, go for that run/hike/etc, and enjoy life!
All that being said, live your life! I used getting clots and learning of my clotting disorder as a way to remove my head from my ass. It was a wake up call that we each get one life to live (unless if you believe in reincarnation, etc).
I took my measurements and took to Amazon! A lot of them are nude or black with lace at the top.
EDIT: Here are some links to my favorites /u/satumaatango , and congratulations on your big day!!
https://www.amazon.com/dp/B000WFWL0U/ref=cm_sw_r_cp_awd_KszIwbA0S3C9V
https://www.amazon.com/dp/B002SKUPVE/ref=cm_sw_r_cp_awd_luzIwb3QGYBH6
Here are some links for the product in the above comment for different countries:
Amazon Smile Link: pulse ox
|Country|Link|Charity Links|
|:-----------|:------------|:------------|
|USA|smile.amazon.com|EFF|
|Germany|www.amazon.de||
|India|www.amazon.in||
To help donate money to charity, please have a look at this thread.
This bot is currently in testing so let me know what you think by voting (or commenting). The thread for feature requests can be found here.
I wear Jobst brand "Active Wear' knee high, available from Amazon: https://www.amazon.com/gp/aw/d/B004IV75CS
The Active Wear line is thicker, more like a sports sock than the thin dress sock material.
If your husband is still on thinners the knee high will be less expensive than thigh high. Check with your doc for specifics (although mine couldn't really give me any guidance on type).
Hey. We're mutant siblings. I'm on Xaralto, so it isn't too bad (I haven't had my blood checked in a few months, actually). [Here] (http://www.amazon.com/Medical-Alert-Stainless-Cuff-Bracelet/dp/B004TMHTRC/ref=sr_1_8?s=hpc&ie=UTF8&qid=1410881510&sr=1-8&keywords=medical+alert+bracelets+coumadin) is the bracelet I was wearing before I switched to Xaralto. I haven't updated it yet (although I need to).