Top products from r/Hemophilia

We found 7 product mentions on r/Hemophilia. We ranked the 6 resulting products by number of redditors who mentioned them. Here are the top 20.

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Top comments that mention products on r/Hemophilia:

u/machine_elf710 · 1 pointr/Hemophilia

I feel ya brother. I'm in pretty much the same exact boat, but you are a few years ahead of me. I take Celebrex daily and I've being taking 10 to 40 mg of oxycodone (depending on the kind of day I'm having and the weather) for the last 10 years or so. When I was still only a couple years into it I struggled a bit with taking more than I should, but anytime I take more than my normal dose and go above my tolerance level I get insanely itchy, which is pretty much what has allowed me to regulate my usage so reliably and not develop a problem.

Ibuprofen works great for me too, but i usually only take it right after i factor up. Pot is great. Doesn't lessen pain like the oxy does, more makes it easier to tolerate. I don't care as much. Plus maybe an anti-inflammatory effect, idk. I live in mass where we've had medical for a while now, but my htc won't/ can't prescribe it. I've been smoking it since high school though so it's whatever. I wish i could give advice on where to get some but i don't really have any. Just ask people you think might smoke. They probably do. Ibuprofen works better for pain, but pot is still worth trying imho.

I've had three synovectomies now on three of my four target joints - ankles and elbows, with mixed results. The thing with the steroid injections is that you end up using your crappy join a lot more than you would without the injections so in the span of the year which is about all you will probably get out of it in terms of relief, you do more damage then you normally would, thereby shortening the life of your joint. I suspect that's why they are hesitant to give you them. One of my surgeons offered it as a short-term relief until I got a synovectomy, but I didn't end up trying it.

I got a tens unit a while back. Its good for when the pain is pretty bad and you aren't moving around a lot. It kind of hurts a bit itself but you just have to find the right placement for the pads till it doesn't sting too much. It kind of just blocks the pain signals in your nerves by giving them something else to hurt about but there's different settings and strengths and for how cheap it is it is definitely worth giving a shot.

The tens i have:
https://www.amazon.com/gp/aw/d/B00K6LPSJG/ref=mp_s_a_1_7_a_it?ie=UTF8&qid=1517449950&sr=8-7&keywords=tens+unit&dpPl=1&dpID=41Uca0heL5L&ref=plSrch

u/turtlepackslight · 2 pointsr/Hemophilia

Recumbent bike exercise machine has helped me maintain my legs and strengthen them. Although its my right elbow that is my main issue giver, I do have a right ankle that gave me loads of trouble when I was younger. All the bleeds over the years have caused it to sort of bow out when I walk like a semi circle when I lift it to step. My physical therapist offered me a shoe insert and it made it much easier on my ankle walking. You see my body was purposely avoiding bending that ankle joint as much as it could, that's why I just developed a natural semi circle movement. Now as long as I have shoes on with that insert I walk normally and don't have any pain.


Not sure if any of this info is helpful, but these are the inserts I am talking about
https://www.amazon.com/Adjustable-Orthopedic-Heel-Length-Discrepancies/dp/B01FI5PEBG/ref=sr_1_5?keywords=shoe+wedge+inserts&qid=1567787546&s=hpc&sr=1-5

u/MrFurrberry · 2 pointsr/Hemophilia

exercise bike...

I'm 6'2, 200lbs... this one works really well for me, and it's extremely small and fits in the corner.

I like to hop on, and just go for a ride... put it right in front of my keyboard and the time just flies, and by the time I have finished whatever, I've ridden 7 miles / 30 minutes / 300 calories.

http://www.amazon.com/gp/product/B002KV383S

u/StopMakingMissense · 1 pointr/Hemophilia
  • Use a 27 gauge butterfly
  • Drink plenty of fluids beforehand. Hot tea worked for me
  • Use a heat pack to help your veins really pop
  • Get a one-handed tourniquet
u/bleedingman · 1 pointr/Hemophilia

Same idea here, factor in fridge and supplies in a rolling cart that is kept in a closet. Similar to this with an organizer tray in the top for butterflies (27g x .5”) alcohol wipes, gauze, coban etc.