Top products from r/Interstitialcystitis
We found 27 product mentions on r/Interstitialcystitis. We ranked the 58 resulting products by number of redditors who mentioned them. Here are the top 20.
1. NOW Supplements, Aloe Vera (Aloe barbadensis) 10,000 mg, Supports Digestive Health*, 100 Softgels
Sentiment score: 1
Number of reviews: 2
10,000 mg EQUIVALENCY PER SOFTGEL: Aloe vera offers a variety of nutrients, including vitamins, minerals, enzymes, and amino acidsSUPPORTS THE BODY'S HEALING PROCESS*: Scientific studies have indicated that aloe can help to support the body’s own healing processes*GENUINE WHOLE FOOD: Aloe vera has...
2. AZO Urinary Tract Infection (UTI) Test Strips, Accurate Results in 2 Minutes, Clinically Tested, Easy to Read Results, Clean Grip Handle, #1 Most Trusted Brand, 3 Count
Sentiment score: 1
Number of reviews: 2
TREAT YOUR URINARY TRACT INFECTION EARLY. Early treatment is the key to fast UTI relief and preventing more serious problems. With AZO Test Strips, you can take a UTI test at home and simply call your doctor with the results..FAST. Test results are ready to read in just two minutes. The sooner you g...
3. Heal Pelvic Pain: The Proven Stretching, Strengthening, and Nutrition Program for Relieving Pain, Incontinence,& I.B.S, and Other Symptoms Without Surgery
Sentiment score: 2
Number of reviews: 2
Great product!
5. Essentia Water, Ionized Alkaline Bottled Water; Electrolytes for Taste, Ionized Hydration, pH 9.5 or Higher, 33.8 Fl Oz, Pack of 12
Sentiment score: 0
Number of reviews: 1
Essentia alkaline water, optimized for ionized hydration, invites users to go farther for longer, whether jogging, running, hiking, walking, rowing, biking or climbingUtilizing an innovative, unique ionization process that sets them apart, Essentia Water transforms H2O from across the nation into cl...
6. Takmaria (Basil Seeds) - 7oz
Sentiment score: 1
Number of reviews: 1
Takmaria 200g/7 oz.Brand - SWADLatin name - Ocimum basilicumBasilSeeds
7. Donut Pillow Seat Cushion Orthopedic Design| Tailbone & Coccyx Memory Foam Pillow | Pain Relief for Hemorrhoid, Pregnancy Post Natal, Surgery, Sciatica and Relieves Tailbone Pressure by Pillow Palace.
Sentiment score: 0
Number of reviews: 1
CHIROPRACTOR and DR RECOMMENDED- Due to it extreme comfort, and great success rate, Dr.’s will recommend the donut pillow, to decrease and pressure pain, and increasing your comfort while sitting. In addition, it promotes proper spine alignment. This is especially great, for right AFTER BIRTH.HIGH...
8. AZO Urinary Pain Relief Maximum Strength (12 Tablets)
Sentiment score: 0
Number of reviews: 1
AZO Standard Maximum Strength Tablets-12 ct. (Pack of 4)
9. Puroast Low Acid Ground Coffee, House Blend, High Antioxidant, 12 Ounce Bag (Pack of 2)
Sentiment score: 1
Number of reviews: 1
70% Less Acid than Other Coffees7X More Antioxidants than Green Tea100% Pure Coffee - No Additives or ExtractionsA "Feel Better, Not Bitter" Coffee - No Bitter AftertasteInnovative Roasting Process developed by Puroast - Unlike any coffee company in the World
10. Rw Knudsen Just Juices Just Blueberry Orgnc Multiserve 100% Juice 32 Oz
Sentiment score: 0
Number of reviews: 1
100% premium blueberry juiceNon-GMO project verified
11. Patterson Medical Anabox 7 Day Pill Box with 5 Compartments Per Day - Rainbow
Sentiment score: 0
Number of reviews: 1
One Anabox Weekly Pill BoxColour: RAINBOWThe outer caseis designed so thatthe dispenser is easily detatched and replaced. Ifit is held upside down the dispensers will not fall out.A medication chart is attached to the bottom of the case with space to write the patients name, medication notes and det...
12. Heal Pelvic Pain: The Proven Stretching, Strengthening, and Nutrition Program for Relieving Pain, Incontinence, I.B.S, and Other Symptoms Without Surgery
Sentiment score: 0
Number of reviews: 1
13. NOW Supplements, Ultra Omega-3 Molecularly Distilled and Enteric Coated, 90 Softgels
Sentiment score: 2
Number of reviews: 1
CARDIOVASCULAR SUPPORT*: Take 1 NOW Ultra Omega-3 softgel 1 to 2 times daily to help support brain health.*MOLECULARLY DISTILLED - ENTERIC COATED: Those who experience nausea or reflux from other fish oils should find this enteric coated, odor-controlled softgel easier to tolerate.CERTIFICATIONS/CLA...
14. Jarrow Formulas Quercetin, Cardiovascular Support, 500 mg, 100 Veggie Caps
Sentiment score: 0
Number of reviews: 1
Cardiovascular Support*Supports antioxidant statusQuercetin is an AllerTame flavonoid, i.e., one that may promote a healthy immune response to environmental challenges.
15. Pacific Foods Organic Oat Original Plant-Based Beverage, 32 Fl oz
Sentiment score: 1
Number of reviews: 1
The sweetness of the oats shine in this creamy beverageGreat milk substitute to enjoy as a beverage, over cereal, or in everything from gravy to cupcakesGood source of calcium and vitamin D, is low-fat, lactose, cholesterol, and soy free, is vegan, and contains 4g of proteinSweetened with organic oa...
16. MarshMallow Root Tea (cedevita) 50g. Loose
Sentiment score: 1
Number of reviews: 1
Net quantity of 50 gramsContains althaeae radix (marshmallow root)Product of Croatia
17. Pero Instant Natural Beverage, 7-Ounce Canisters (Pack of 6)
Sentiment score: 0
Number of reviews: 1
All natural ingredients -- malted barley, barley, ch icory, rye and nothing else.100% naturally caffeine freeCoffee-like tasteVery low acidity
18. Nature's Way Premium Herbal Marshmallow Root, 960 mg per serving, 100 Capsules (Packaging May Vary)
Sentiment score: 1
Number of reviews: 1
Marshmallow root has been traditionally used to help support digestive health.*Non-GMO Project Verified, Tru-ID CertifedVerified Organic by Quality Assurance Intl.Digestive healthNo Added Sugar
19. Solaray Vitex Chaste Berry Extract 225mg | Traditional Womens Health Support Supplement | Contains .5% Agnuside | Non-GMO | Vegan | 60 VegCaps
Sentiment score: 1
Number of reviews: 1
Womens Tradition: Chasteberry has been used by women for more than 2500 years to support healthFormulated for You: Chaste Tree is thought to help support healthy balance & menstruationPremium Vitex: Each capsules is guaranteed to contain .5% (1.13mg) of AgnusideTrusted Brand: Manufactured in our own...
Hi! Oh wow, you're the first person who's said they too got it at around 20. Can I ask -- did doctors think it was every single STD in the book (given the age) and treat you wrongly for all sorts of crap? That's what happened to me, was terrible lol.
My symptoms differ with each flare up, but right now I get a sharp or dull pain on the left side of pelvis which then resonates through my back on the left hand side. I get burning sensations / sharp pains in my inner thighs and generally that pubic area feels very heaty. It gets itchy from time to time. After I go to the bathroom, it feels like that area got a workout. Some mornings, it really stings when I go to the bathroom and that stingy / burny pain really just knocks me out. I have to lie down for a bit to get over it. I try to drink tons of water before I go to bed to avoid that.
There's a general idea in Ayurvedic medicine that some bodies are prone to what translates in English as "heatiness". That body type should consume certain foods and drinks that suit it to avoid inflammation.
The Chinese also believe in maintaining a balance of hot and cool, too hot and its cystitis, too cool and another host of issues show up. There is a traditional Chinese drink called "Three Legs Drinking Water" which is normal water with a Chinese mineral that relieves heatiness and cools the body, this has worked well for me in the past: https://en.wikipedia.org/wiki/Three_Legs_Cooling_Water
Basil seeds are a common ingredient in desserts in the Middle East and in India, where it cools the body after heaty or spicy food. You can get these in the US (if that's where you are) on Amazon: https://www.amazon.com/IndianBlend-T5-V1N4-QIZ2-CA-Takmaria-Basil-Seeds/dp/B004XTDRMM/ref=sr_1_11?s=lawn-garden&ie=UTF8&qid=1538429238&sr=1-11&keywords=basil+seeds
Just dissolve it in big glass of water, a tablespoon or so, leave it overnight and just down it. Do it for a few days and see how you feel.
Just wanted to point out these are things that have worked for me, that may not work for everyone, but both are natural and harmless to try.
There's a lot of great information to understanding through the body through Ayurveda or TCM (Traditional Chinese Medicine). If you ever have the opportunity to visit a Traditional Chinese Medicine doctor, I highly recommend it because for chronic, autoimmune conditions / inflammation, they have a mapping and understanding of the human body that has truly helped me the most. Not saying do acupuncture or anything like that, but they can recommend adjustments to lifestyle and diet that make a world of difference. Because I can't always follow their lifestyle / diet advice, even though I really should, I can almost always predict when my body will react thanks to what they've told me.
Hope you feel better!
Tricalcium phosphate is the one that I keep seeing. I looked it up already and it says its just a form of calcium. The list you give is interesting.. but I wonder if anyone can actually narrow it down to one of them if it does happen cause a flare?
Natural flavors are also iffy for me.
I enter remission often, but I attribute that to never eating something with an ingredient that I didn't know what it was.. so I'm super careful.
https://www.amazon.com/Pacific-Foods-Non-Dairy-Beverage-Original/dp/B000R7829M/ref=pd_day0_325_4?_encoding=UTF8&pd_rd_i=B000R7829M&pd_rd_r=2JXV6R8ATEHNF3B0BA9S&pd_rd_w=LWK4V&pd_rd_wg=ZUiRB&psc=1&refRID=2JXV6R8ATEHNF3B0BA9S
This one is looking pretty good.
I wasn't aware it was a tea? The only version of it I was aware of was in capsule form.
The hardest thing to give up for me diet wise was diet coke. I LOVED that soda. There was nothing better than that delicious crispyness. I have become more sensitive to foods/drinks over time. Used to be able to drink champagne with barely any side effects, and now I can't drink a flute without being in pain for a week. No carbonated drinks, no highly acidic drinks, no wonderful champagne. Still trying to get used to it and avoid temptation as much as possible.
I love Adagio Teas. Anything in the Rooibos category has been safe for me, and all of the herbals except Mate teas, it has caffeine. I think they include it in "herbal" because it is not from the tea plant. I recommend the hazelnut and caramel flavors to people who miss coffee drinks.
I didn't especially like the taste of marshmallow tea. It tastes a bit too "rooty" for me, but you might like it. I got this brand from a local grocery store that has a lot of eastern European foods. If you've ever had Hypnotiq Harmonie, that's what it tastes like.
It's important to note that marshmallow root tea interferes with absorption of oral medication.
The biggest help was using a Berkey Filter. You can also find them on Amazon, just be sure you are getting a official one, there are knockoffs that don't do the same thing. The reputable Berkey companie does sell on Amazon at Berkey On Amazon.
It filters out all of the chemicals that are necessary to cleanout the water.
Like I said, trying to have an alkaline diet is also important. How to do so is explained better https://howtoremovetoxins.com/how-to-alkalize-your-body-feel-better-by-being-less-acidic
We use Puroast Low Acid Coffee or Java Planet Organic Coffee.
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I have struggled a lot with this. It got to the point where I thought I could definitely tell the difference between a UTI and a flare, but I would go to the doc for a urinalysis just to be told that there was no sign of infection.
This product saved me many a time. Super cheap and way cheaper than what I thought was the only similar product on the market.
I have had the same yucky experience with fish oil with lemon. Gross!! I'd been taking Now brand omega 3 from Amazon for years with absolutely zero fishy taste. I only tried the fish oil with lemon recently because it was cheaper. NEVER AGAIN! I'll attach the Amazon link. I promise you'll like it 1,000 % better
Good luck!!
https://www.amazon.com/NOW-Ultra-Omega-3-90-Softgels/dp/B0015L2LBE
There is a book meant for the partners of people with IC called "Please Understand" Link to amazon that is supposed to help the healthy partner get it and offer suggestions for both parties to navigate IC. I haven't read it but I know some people who found it helpful for a spouse who can't seem to understand. You might also bring him to a doctor's appointment with you if you haven't already so he can hear it from a doctor, it's shitty but some people take things more seriously when an "authority" person says them. He could also post here, we get that kind of post at least once a month and it seems like the healthy partner learns a lot from it.
It's all so confusing haha I feel you. My PT appointment was definitely promising! I'm in NYC and go to Beyond Basics Physical Therapy, the head woman there is very invested in pelvic pain and came out with this book that I also bought! you should check it out if you're waiting to get in to see a PT as it has alot of exercises and massages in there, and the reviews are also very promising.
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https://www.amazon.com/gp/product/0071546561/ref=ppx_yo_dt_b_asin_title_o01_s00?ie=UTF8&psc=1
> I was told it was pelvic floor tension, and slowly over the years the flare ups just kind of became less and less.
That's interesting. Who told you this and what did they recommend for you at the time?
If the pain you're having is a recurrence of that issue, I'd recommend the book "Heal Pelvic Pain". Hopefully it's available in your country. There's a digital version you can read right away. It's effectively a home PT/physio program of gentle stretching, which is almost identical to what I was taught in PT.
It would make sense that you're continuing to experience breakthrough pain if the underlying condition isn't being treated. It's possible there may be more to it given the pain coinciding with your implant, but that's a good place to start.
Chaste berry is supposed to regulate your hormones. My naturopath recommended it to me. Poster below recommend it too. https://www.amazon.com/Solaray-Vitex-Chaste-Extract-Capsules/dp/B0001VVGLU
I have an Anabox weekly pillbox. It's a rainbow! But it's also really functional and makes things much easier.
I do the weekly refill and I've also been trying out using an app on my phone called Medisafe. You can set reminders to take your meds and also track when you'll need to order refills etc.
You sound like you're in america. Do you have a Walmart or drug store nearby so that you can grab one of these just to have on hand? $9 is cheaper than an ER visit, but at this point it sounds like you need to go in.
Medical debt is just that, medical debt. If you're already in it, some more isn't going to make it worse. They're not going to send you away because you owe them money. They're going to treat you and add another bill to the mix, but all it is, is a bill. Go get help before you do something to yourself that will cost you even more.
$20.00 for a 12 pack of liter bottles.
Essentia Water; 12, 1-Liter Bottles; Ionized Alkaline Bottled Water; Electrolytes for Taste; Better Rehydration; pH 9.5 or Higher; Pure Drinking Water; For the Doers, the Believers, the Overachievers https://www.amazon.com/dp/B005HG9ESG/ref=cm_sw_r_cp_apa_i_Bm-XCbXKY273W
https://www.amazon.com.au/gp/aw/d/B00772AQD0/ref=ya_aw_oh_bia_dp?ie=UTF8&psc=1
Hopefully that works.
Prelief was very helpful to me while trying to get my symptoms under control during and after diagnosis. I would take it right before eating, and I do mean right before...it will upset your stomach and make you vomit if you don't eat within about 15 minutes of taking it... I also use Azo standard Maximum strength for the burning sensations. I provided the Amazon links here...but you can usually find these in grocery stores and pharmacies in the US.
The laxative components in some aloe vera items are called anthraquinones.
These other brands I've tried that are like Desert Harvest (in that they don't have the laxative), but they are less expensive:
[NOW Aloe Vera Gels] (https://www.amazon.com/NOW-Aloe-Vera-10000mg-Softgels/dp/B00772AQD0/ref=sr_1_3?crid=2JDGSG1XVAMI&keywords=aloe+vera+capsules&qid=1556543194&s=gateway&sprefix=aloe+vera+cap%2Caps%2C141&sr=8-3)
[Pharma-Aloe Capsules] (https://www.amazon.com/NOW-Aloe-Vera-10000mg-Softgels/dp/B00772AQD0/ref=sr_1_3?crid=2JDGSG1XVAMI&keywords=aloe+vera+capsules&qid=1556543194&s=gateway&sprefix=aloe+vera+cap%2Caps%2C141&sr=8-3)
I just ordered this one off amazon: https://www.amazon.com/Donut-Pillow-Orthopedic-Hemorrhoid-Pregnancy/dp/B07MXNFBMK/ref=mp_s_a_1_4?keywords=doughnut+cushion&qid=1574377629&sprefix=doughnut+cushio&sr=8-4
Someone else already mentioned the drugs, but other things you can try that have helped me:
I plan to try bee pollen extract next.
I eat a very plain elimination diet, planning to use all in combination these in the next few days. I've been using flower pollen and quercetin for around 5 years and it's kept things manageable, but I want to hit pain-free status.
Read this:
https://www.amazon.com/Heal-Pelvic-Pain-Strengthening-Incontinence-ebook/dp/B001FA0O96/ref=nodl_