(Part 2) Top products from r/Interstitialcystitis
We found 21 product mentions on r/Interstitialcystitis. We ranked the 58 resulting products by number of redditors who mentioned them. Here are the products ranked 21-40. You can also go back to the previous section.
21. Donut Pillow Seat Cushion Orthopedic Design| Tailbone & Coccyx Memory Foam Pillow | Pain Relief for Hemorrhoid, Pregnancy Post Natal, Surgery, Sciatica and Relieves Tailbone Pressure by Pillow Palace.
Sentiment score: 0
Number of reviews: 1
CHIROPRACTOR and DR RECOMMENDED- Due to it extreme comfort, and great success rate, Dr.’s will recommend the donut pillow, to decrease and pressure pain, and increasing your comfort while sitting. In addition, it promotes proper spine alignment. This is especially great, for right AFTER BIRTH.HIGH...
23. Managing Chronic Pain: A Cognitive-Behavioral Therapy Approach Workbook (Treatments That Work)
Sentiment score: 1
Number of reviews: 1
Oxford University Press USA
24. Please Understand: The Interstitial Cystitis Guide For Partners
Sentiment score: 1
Number of reviews: 1
25. Solaray Vitex Chaste Berry Extract 225mg | Traditional Womens Health Support Supplement | Contains .5% Agnuside | Non-GMO | Vegan | 60 VegCaps
Sentiment score: 1
Number of reviews: 1
Womens Tradition: Chasteberry has been used by women for more than 2500 years to support healthFormulated for You: Chaste Tree is thought to help support healthy balance & menstruationPremium Vitex: Each capsules is guaranteed to contain .5% (1.13mg) of AgnusideTrusted Brand: Manufactured in our own...
26. Nature's Way Premium Herbal Marshmallow Root, 960 mg per serving, 100 Capsules (Packaging May Vary)
Sentiment score: 1
Number of reviews: 1
Marshmallow root has been traditionally used to help support digestive health.*Non-GMO Project Verified, Tru-ID CertifedVerified Organic by Quality Assurance Intl.Digestive healthNo Added Sugar
27. Pero Instant Natural Beverage, 7-Ounce Canisters (Pack of 6)
Sentiment score: 0
Number of reviews: 1
All natural ingredients -- malted barley, barley, ch icory, rye and nothing else.100% naturally caffeine freeCoffee-like tasteVery low acidity
28. MarshMallow Root Tea (cedevita) 50g. Loose
Sentiment score: 1
Number of reviews: 1
Net quantity of 50 gramsContains althaeae radix (marshmallow root)Product of Croatia
29. Pacific Foods Organic Oat Original Plant-Based Beverage, 32 Fl oz
Sentiment score: 1
Number of reviews: 1
The sweetness of the oats shine in this creamy beverageGreat milk substitute to enjoy as a beverage, over cereal, or in everything from gravy to cupcakesGood source of calcium and vitamin D, is low-fat, lactose, cholesterol, and soy free, is vegan, and contains 4g of proteinSweetened with organic oa...
30. Jarrow Formulas Quercetin, Cardiovascular Support, 500 mg, 100 Veggie Caps
Sentiment score: 0
Number of reviews: 1
Cardiovascular Support*Supports antioxidant statusQuercetin is an AllerTame flavonoid, i.e., one that may promote a healthy immune response to environmental challenges.
31. NOW Supplements, Ultra Omega-3 Molecularly Distilled and Enteric Coated, 90 Softgels
Sentiment score: 2
Number of reviews: 1
CARDIOVASCULAR SUPPORT*: Take 1 NOW Ultra Omega-3 softgel 1 to 2 times daily to help support brain health.*MOLECULARLY DISTILLED - ENTERIC COATED: Those who experience nausea or reflux from other fish oils should find this enteric coated, odor-controlled softgel easier to tolerate.CERTIFICATIONS/CLA...
32. Best Ginger Tea with Honey Crystals 30 bags
Sentiment score: 1
Number of reviews: 1
Prince of PeacePrince of Peace Ginger Honey Crystals 30 Bag(S)Prince of Peace Ginger Honey Crystals add a great, unique flavor to hot or cold beverages.
33. Heal Pelvic Pain: The Proven Stretching, Strengthening, and Nutrition Program for Relieving Pain, Incontinence, I.B.S, and Other Symptoms Without Surgery
Sentiment score: 0
Number of reviews: 1
34. Patterson Medical Anabox 7 Day Pill Box with 5 Compartments Per Day - Rainbow
Sentiment score: 0
Number of reviews: 1
One Anabox Weekly Pill BoxColour: RAINBOWThe outer caseis designed so thatthe dispenser is easily detatched and replaced. Ifit is held upside down the dispensers will not fall out.A medication chart is attached to the bottom of the case with space to write the patients name, medication notes and det...
35. Rw Knudsen Just Juices Just Blueberry Orgnc Multiserve 100% Juice 32 Oz
Sentiment score: 0
Number of reviews: 1
100% premium blueberry juiceNon-GMO project verified
36. Puroast Low Acid Ground Coffee, House Blend, High Antioxidant, 12 Ounce Bag (Pack of 2)
Sentiment score: 1
Number of reviews: 1
70% Less Acid than Other Coffees7X More Antioxidants than Green Tea100% Pure Coffee - No Additives or ExtractionsA "Feel Better, Not Bitter" Coffee - No Bitter AftertasteInnovative Roasting Process developed by Puroast - Unlike any coffee company in the World
37. AZO Urinary Pain Relief Maximum Strength (12 Tablets)
Sentiment score: 0
Number of reviews: 1
AZO Standard Maximum Strength Tablets-12 ct. (Pack of 4)
38. Vitanica Bladder Ease, Bladder Support, Vegan, 180 Capsules
Sentiment score: 1
Number of reviews: 1
Bladder Ease supports optimal health and natural function of the bladder wall tissue*Suitable for vegetarians and vegansAlso is suitable for menThis product contains no: preservatives, binders, artificial colorings or flavorings, sugars, lactose, salt, wheat, gluten, soybeans, milk derivatives, eggs...
39. Takmaria (Basil Seeds) - 7oz
Sentiment score: 1
Number of reviews: 1
Takmaria 200g/7 oz.Brand - SWADLatin name - Ocimum basilicumBasilSeeds
40. Essentia Water, Ionized Alkaline Bottled Water; Electrolytes for Taste, Ionized Hydration, pH 9.5 or Higher, 33.8 Fl Oz, Pack of 12
Sentiment score: 0
Number of reviews: 1
Essentia alkaline water, optimized for ionized hydration, invites users to go farther for longer, whether jogging, running, hiking, walking, rowing, biking or climbingUtilizing an innovative, unique ionization process that sets them apart, Essentia Water transforms H2O from across the nation into cl...
Hi! Oh wow, you're the first person who's said they too got it at around 20. Can I ask -- did doctors think it was every single STD in the book (given the age) and treat you wrongly for all sorts of crap? That's what happened to me, was terrible lol.
My symptoms differ with each flare up, but right now I get a sharp or dull pain on the left side of pelvis which then resonates through my back on the left hand side. I get burning sensations / sharp pains in my inner thighs and generally that pubic area feels very heaty. It gets itchy from time to time. After I go to the bathroom, it feels like that area got a workout. Some mornings, it really stings when I go to the bathroom and that stingy / burny pain really just knocks me out. I have to lie down for a bit to get over it. I try to drink tons of water before I go to bed to avoid that.
There's a general idea in Ayurvedic medicine that some bodies are prone to what translates in English as "heatiness". That body type should consume certain foods and drinks that suit it to avoid inflammation.
The Chinese also believe in maintaining a balance of hot and cool, too hot and its cystitis, too cool and another host of issues show up. There is a traditional Chinese drink called "Three Legs Drinking Water" which is normal water with a Chinese mineral that relieves heatiness and cools the body, this has worked well for me in the past: https://en.wikipedia.org/wiki/Three_Legs_Cooling_Water
Basil seeds are a common ingredient in desserts in the Middle East and in India, where it cools the body after heaty or spicy food. You can get these in the US (if that's where you are) on Amazon: https://www.amazon.com/IndianBlend-T5-V1N4-QIZ2-CA-Takmaria-Basil-Seeds/dp/B004XTDRMM/ref=sr_1_11?s=lawn-garden&ie=UTF8&qid=1538429238&sr=1-11&keywords=basil+seeds
Just dissolve it in big glass of water, a tablespoon or so, leave it overnight and just down it. Do it for a few days and see how you feel.
Just wanted to point out these are things that have worked for me, that may not work for everyone, but both are natural and harmless to try.
There's a lot of great information to understanding through the body through Ayurveda or TCM (Traditional Chinese Medicine). If you ever have the opportunity to visit a Traditional Chinese Medicine doctor, I highly recommend it because for chronic, autoimmune conditions / inflammation, they have a mapping and understanding of the human body that has truly helped me the most. Not saying do acupuncture or anything like that, but they can recommend adjustments to lifestyle and diet that make a world of difference. Because I can't always follow their lifestyle / diet advice, even though I really should, I can almost always predict when my body will react thanks to what they've told me.
Hope you feel better!
"Uva ursi, or bearberry, is an alternative and natural approach for treating urinary tract infections. This herb contains active ingredients, such as hydroquinone and arbutin, which provide antiseptic, anti-inflammatory and antibacterial properties useful for treating urinary tract infections." - link
It's an ingredient in a supplement called Bladder Ease, available on Amazon. I've tried Bladder Ease and seen little-to-no improvement, but many people swear by it.
Here is the info I could find on juniper berries:
"Juniper berries have both antibacterial and antifungal properties. (3, 4) One of the most popular homeopathic uses for juniper berries is using them to prevent or naturally remedy urinary tract infections and bladder infections.
The berries are also a natural diuretic, which helps the body flush out excess fluids from the bladder and urethra. (5) This has the potential to reduce bloating."
source
Tricalcium phosphate is the one that I keep seeing. I looked it up already and it says its just a form of calcium. The list you give is interesting.. but I wonder if anyone can actually narrow it down to one of them if it does happen cause a flare?
Natural flavors are also iffy for me.
I enter remission often, but I attribute that to never eating something with an ingredient that I didn't know what it was.. so I'm super careful.
https://www.amazon.com/Pacific-Foods-Non-Dairy-Beverage-Original/dp/B000R7829M/ref=pd_day0_325_4?_encoding=UTF8&pd_rd_i=B000R7829M&pd_rd_r=2JXV6R8ATEHNF3B0BA9S&pd_rd_w=LWK4V&pd_rd_wg=ZUiRB&psc=1&refRID=2JXV6R8ATEHNF3B0BA9S
This one is looking pretty good.
I wasn't aware it was a tea? The only version of it I was aware of was in capsule form.
The hardest thing to give up for me diet wise was diet coke. I LOVED that soda. There was nothing better than that delicious crispyness. I have become more sensitive to foods/drinks over time. Used to be able to drink champagne with barely any side effects, and now I can't drink a flute without being in pain for a week. No carbonated drinks, no highly acidic drinks, no wonderful champagne. Still trying to get used to it and avoid temptation as much as possible.
I love Adagio Teas. Anything in the Rooibos category has been safe for me, and all of the herbals except Mate teas, it has caffeine. I think they include it in "herbal" because it is not from the tea plant. I recommend the hazelnut and caramel flavors to people who miss coffee drinks.
I didn't especially like the taste of marshmallow tea. It tastes a bit too "rooty" for me, but you might like it. I got this brand from a local grocery store that has a lot of eastern European foods. If you've ever had Hypnotiq Harmonie, that's what it tastes like.
It's important to note that marshmallow root tea interferes with absorption of oral medication.
The biggest help was using a Berkey Filter. You can also find them on Amazon, just be sure you are getting a official one, there are knockoffs that don't do the same thing. The reputable Berkey companie does sell on Amazon at Berkey On Amazon.
It filters out all of the chemicals that are necessary to cleanout the water.
Like I said, trying to have an alkaline diet is also important. How to do so is explained better https://howtoremovetoxins.com/how-to-alkalize-your-body-feel-better-by-being-less-acidic
We use Puroast Low Acid Coffee or Java Planet Organic Coffee.
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I have had the same yucky experience with fish oil with lemon. Gross!! I'd been taking Now brand omega 3 from Amazon for years with absolutely zero fishy taste. I only tried the fish oil with lemon recently because it was cheaper. NEVER AGAIN! I'll attach the Amazon link. I promise you'll like it 1,000 % better
Good luck!!
https://www.amazon.com/NOW-Ultra-Omega-3-90-Softgels/dp/B0015L2LBE
There is a book meant for the partners of people with IC called "Please Understand" Link to amazon that is supposed to help the healthy partner get it and offer suggestions for both parties to navigate IC. I haven't read it but I know some people who found it helpful for a spouse who can't seem to understand. You might also bring him to a doctor's appointment with you if you haven't already so he can hear it from a doctor, it's shitty but some people take things more seriously when an "authority" person says them. He could also post here, we get that kind of post at least once a month and it seems like the healthy partner learns a lot from it.
If you can tolerate ginger, the Asian grocers have a great ginger tea, which I live on when I get a cold.
You can also just buy ginger root and brew your own. Easier to control known ingredients.
Totally agree here. I went through a workbook with my therapist that explains the concepts and gives examples of the strategies. Ultimately, it takes a lot of time and practice to even recognize when you're in a negative thought pattern, never mind correcting it. Even knowing that some of these mental processes that seem overwhelming have names (i.e. catastrophizing) was really helpful to me.
For me I think reframing it in a way that makes sense to me works the best. I think of myself as a rational person. So when I make sweeping negative statements about myself that I wouldn't apply to someone I love, I ask myself, is that a rational thought? It's not. And because that does not align with my view of myself as a rational person, that makes it easier to reject. I also keep a pain/symptom journal so that when I start catastrophizing that "I'll never feel better again" I have an objective measure of my pain level and can point to recent times where I felt better and was able to do more.
Chaste berry is supposed to regulate your hormones. My naturopath recommended it to me. Poster below recommend it too. https://www.amazon.com/Solaray-Vitex-Chaste-Extract-Capsules/dp/B0001VVGLU
I have an Anabox weekly pillbox. It's a rainbow! But it's also really functional and makes things much easier.
I do the weekly refill and I've also been trying out using an app on my phone called Medisafe. You can set reminders to take your meds and also track when you'll need to order refills etc.
$20.00 for a 12 pack of liter bottles.
Essentia Water; 12, 1-Liter Bottles; Ionized Alkaline Bottled Water; Electrolytes for Taste; Better Rehydration; pH 9.5 or Higher; Pure Drinking Water; For the Doers, the Believers, the Overachievers https://www.amazon.com/dp/B005HG9ESG/ref=cm_sw_r_cp_apa_i_Bm-XCbXKY273W
Prelief was very helpful to me while trying to get my symptoms under control during and after diagnosis. I would take it right before eating, and I do mean right before...it will upset your stomach and make you vomit if you don't eat within about 15 minutes of taking it... I also use Azo standard Maximum strength for the burning sensations. I provided the Amazon links here...but you can usually find these in grocery stores and pharmacies in the US.
I just ordered this one off amazon: https://www.amazon.com/Donut-Pillow-Orthopedic-Hemorrhoid-Pregnancy/dp/B07MXNFBMK/ref=mp_s_a_1_4?keywords=doughnut+cushion&qid=1574377629&sprefix=doughnut+cushio&sr=8-4
Someone else already mentioned the drugs, but other things you can try that have helped me:
I plan to try bee pollen extract next.
I eat a very plain elimination diet, planning to use all in combination these in the next few days. I've been using flower pollen and quercetin for around 5 years and it's kept things manageable, but I want to hit pain-free status.
Read this:
https://www.amazon.com/Heal-Pelvic-Pain-Strengthening-Incontinence-ebook/dp/B001FA0O96/ref=nodl_