Top products from r/Lyme

I have NOT cured myself. Let's get that out of the way. I personally think I need to give antibiotics a go for bartonella and see what happens combining them with what I'm already doing. However, these are "natural" things that I have found quite useful for bartonella in particular. I have been much better at one point than I am now, and attribute that to all of this (some things more than others). I have NOT been cured yet, so I'm not claiming any miracles. I have been in a downswing in the past year, and I attribute that mostly to getting away from what was working for me. I say doing as many of these things as possible would be helpful. But if you don't agree/find any of it to be bullshit...don't do it. We don't need to have another internet argument over the validity or proof behind any of this. There is some for some of it, but I'm not offering or claiming anything, but anecdotal evidence here. A little background on me....I'm a former athlete(thanks to these infections) who has always been interested in the best ways to improve my health/body. So when I recommend something like breathing exercises...I recommend them based purely on the physical improvements they have given me. I'm not interested in anything that doesn't work. And just because these things have not "cured" me...does not mean I think they are completely useless. In fact, I may be dead by now or at least in a much worse place physically than I am now and like I used to be. I found some things some people claim as absolute bullshit....to be actually quite helpful. And I have also found some of it to be useless. At least for me. I keep an open mind, and try what I can afford if I think it could be useful. I would recommend these to anyone who has been on antibiotics for a while and isn't noticing any/or little improvement. Maybe just try these for a while instead or in a combination. That's up to you and your doctor. I recommend not jumping in without careful consideration and second opinions. So with all of that said.....these are things I have personally found helpful. I may expound on these later, but for now, google search these herbs in general and with keywords like Lyme, Bartonella, etc if you want any explanations as to WHY they would be helpful.

• Cinnamon Leaf Oil
  
• Cordyceps Extract
  
• Haritaki Fruit
  
• Red Root
  
• Infrared Sauna (you can get a cheap portable one) Helps with detox,
  circulation, and keeping you warm. We tend to run on the chilly side with
  these bugs inhibiting our circulation.
  *Hot baths
  
• A diet filled with generally warming foods. Look up yang foods. These would
  be foods and spices that promote circulation, warmth in the
  body...some are antimicrobial as well (such as garlic). This is basically a
  lifestyle change. You are trying to get back to even....and as these infections
  are diseases that are promoting bodies with weakness, tendency to feeling
  cold, having low energy and poor circulation....we can help this by avoiding
  foods that promote sluggishness and bacteria growth. So cooking veggies
  instead of eating them raw...and drinking tea or room temperature water as
  opposed to cold water can help on this area. For more info on this just google
  yang and yin foods. Certain aspects of Chinese Medecine are more out
  there...but for anyone skeptical... this part is just simple common sense on
  how food, spices and herbs affect your bodies beyond just calorie surpluses
  and defecits. Its already prevelant in western society to a degree. We tend
  toward warm/heavy food in winter when we are cold and need more energy. In
  the summer we go for lighter, colder foods. Take a look at it. Again not a
  cure.....but a very helpful tool. Close to my biggest recommendation. Create an
  environment that the bugs don't thrive in....and attack it with antibiotics
  herbs...go at it from both sides.
  
• Exercise...whatever you can manage...don't overdo it or completely ignore it.
  
• 3 specific Chinese formulas for the infections. Thunder Pearls Lightning
  Pearls, Dragon Pearls. These are for GU Syndrome. Google it. Don't let the
  words "demons" and "snakes" make you dismiss this right away. Read about
  it. These are just the translations from Chinese to English for the ancient way
  these infections were described. In simple terms "demons" was describing
  the more mental aspects of these infections and...bartonella in particular likes
  to mess with and embed itself in the brain and nervous system. "Snakes" is
  describing infections like Lyme....(what's a spirochete look like?). So these
  "Pearls" are a specific brand by one of the better respected TCM Doctors out
  there. Doctor Heiner Fruehauf.
  GU Syndrome
  
  
• Breathing Exercises. There are a lot of different kinds of breathing exercises.
  Some to basically stimulate yourself and some to calm you down. I'm sure you
  have heard of Qi Gong and Yoga Breathing at some point. Yes, there is a lot of
  bullshit, New Agey and ineffective things that are constantly promoted and labeled as Qi Gong. The term simply means "breath work," or breath exercise.
  I do not, once again, believe every single one of these exercises is
  bullshit. In fact some of it is absolutely fantastic, practical and relatively easy
  to learn. I have found, through really looking into this stuff, that its some of the most basic exercises that are the most effective and based in common sense from a western perspective. So I will focus on the one that I believe to be the
  easiest and most effective. And that is the Warriors Breath. Its basically deep chest breathing that floods your body with oxygen( or whatever the actual
  explanation is, that's up for debate on the internet) in a healthy way. It might
  look like hyperventilation to the unfamiliar eye...but its not. There is a
  difference. This is yogic breathing that is very similar to some of the breathing
  that Buddhist and Tibetan Monks do to stay warm in the snow. The most famous, easiest way to learn about this is by looking into Wim Hof (The Iceman). Yes, he makes some claims that are, in my opinion, excessive. I do not believe that this alone is the answer to all health problems or our infections...but I do think it is a fantastic tool that has given me back energy, relaxation and cognitive function that nothing else has..which, at the least, indirectly effects your immune system. Bit I sing its praises for the energy it has given my body back. Deep reserve energy...not the cafiene and stimulant type of energy. The specific version I do (which I believe to be better than Wim Hof's) is made by a guy who I would describe as very New Agey...for hardcore athiests and people who are highly skeptical of anything Eastern....listening to his CD (where he coaches you through a breathing session) will probably piss you off. I get it. It is kinda cringey to me sometimes when he talks about his beliefs, but it's also not as bad as I'm making it sound. Either way, if that bothers you...get over it. I think the actual, physical exercise he has you do is great. He has worked with Wim Hof and studied with Tibetan monks and combined these two very similar breathing forms and basically fine tuned it. If this interests you I would absolutely recommend buying his CD over Wim Hof's course. I believe it's better and cheaper
  
  Have a look into Wim Hof first though. There is a lot of free stuff on YouTube that can sort of introduce you to the concept.
  
  DO NOT DO the cold immersion part of Wim Hof's program. Just the breathing.
  (I had a backslide because of cold immersion and cold baths) Quick cold showers every morning are good though.
  
  
• Avoid cold MOST of the time. I already mentioned try to stay warm and keep your circulation going as best you can. However, my one deviation from this rule would be to to take a quick cold shower in the mornings. (You do not want PROLONGED cold exposure.) Cold showers are shown to have positive affects on the nervous system, hormones, and immune system. It's really helps lift your energy. But staying in the cold for too long will be detrimental to people like us. It was for me. My infections came back a lot worse after a period of trying the cold immersion. The infections thrive in a "cold" body.
  
  
• Gynostemma (An Adaptogen that is really great at balancing your hormones,
  adrenals , and nervous system. This and Cordyceps are my two favorite herbs for general energy and we'll being.)
  
  
• Doug Coil Rife Machine. This is expensive...and I would only recommend it if you have the money, but only as an adjunct to other things. Don't make it a priority and listen to opinions before you buy one. You will find a lot of opinions that they are useless and a scam..once again....this is true for some Rife machines....but in my OPINION and from my PERSONAL experience...the Doug Coil machine has value in killing the infections. But, take that with a grain of salt. It is a lot of money to throw towards that. Listen to opinions on both sides and NEVER decide to put your faith in only a rife machine. That is not going to work and would be a very stupid, uneducated way to approach this disease.... in my opinion.
  
  This is all I'm going to type right now. Take what you want and throw away what you don't. I'm making no claims of a cure, and I'm still not free of this disease. There are natural things that can be helpful....but I'm only listing some of the ones that I have tried and found to be helpful. Cheers.
  
  Edit: Also a huge help. Coffee Enemas and detox in general. Some help with Byron White as well.
  

Jordan Fisher Smith, one of the Lyme disease patients documented in Under Our Skin (a required film for Lymies!), is the only person who I am aware of who claims that he is “cured.” His treatment was long-term antibiotics, as well as Chinese acupuncture & herbs, supplements, a clean diet, exercise & proper sleep. Jordan’s struggle is partially described in a 2006 article for Backpacker—“Reality Bites: Lyme Disease”. In 2016 he said, “I was treated for 7-1/2 years and have been totally cured now for 8 years. There are others.”


Ally Hilfiger, designer Tommy Hilfiger’s daughter, wrote a (great!) book titled Bite Me, describing a nightmarish experience with Lyme that began in her childhood. She now refers to her health status not as “cured,” but instead, “managed.”


“Managed” is a term that resonates with me. I do not believe there is a cure for Lyme (if there were wouldn’t we know about it by now??), however I do know of people who find a “managed” place and are able live fulfilling lives. That is my goal, and I wish this for you too!


—————
FWD: The complexity of “managed” >>

💚 Thought I’d share something I just wrote to my sister. Sums up the reality that has unfolded in the past 6+ years while being treated for late-stage Lyme disease. As they say— take what you want and leave the rest:

“Oh ya there is definitely a ‘secondary lyme syndrome’ meaning lyme and/or lyme treatment will cause or enable other issues/ailments/diseases. It's a catch 22... like chemo, it can wreck you almost as much as the cancer. U just have to hope your immune system has been boosted enough after treatment to fight off anything new. Immune system will always be comprised tho because there is no ‘cure’ for lyme, the bacteria is always lurking even tho antibiotics can take care of a lot of it. U just have to try to eat clean, rest, no stress, take supplements, stay as healthy as possible so as not to allow the bacteria to take over again. Kind of like AIDS patients - they have to be really careful.”

So, there it is. Defend yourself against Lyme disease and if you suspect you have it, see a “lyme-literate doctor” to help nip it in the bud. 💚

> Crohn's is permanent

There was a guy who almost died from Crohn's. He just about had his entire GI tract removed but likely wouldn't have survived so they sent him home. He attributes his recovery primarily to a black powder he started taking that's a seed form of probiotics.

There was a small study done with this probiotic and a placebo. The probiotic group reported very good results with several reporting becoming asymptomatic IIRC.

The guy's name is Jordan Rubin and the book he wrote about his story is Patient Heal Thyself (Amazon link, but you can probably find it elsewhere). He went on to turn the probiotic into a supplement others could obtain. It's called Primal Defense. Here is a link to the study.

It's no triple-blind study with gobs of participants, but when you're desperate, you don't necessarily wait for mainstream acceptance for a perfectly safe probiotic (also that's a train that's never coming). It was no silver bullet for me, but I don't have Crohn's, but food sensitivities + digestive issues.

All that to also say that it seems to support what you may have indicated: Decimating the good bacteria in your gut can lead Crohn's (genetic predisposition likely being a factor) and restoring said bacteria can reverse it.
Not sure if you're familiar with [the yummy sounding] fecal transplants, but they've gotten cheaper & easier (frozen pills!) and would likely have a same/similar effect.

edit: Changed Amazon link to fit Reddit's rules.

I did 3 years of LLMD treatment, which helped with some symptoms, but I still have disabling fatigue. I've been off treatment for about two years.

Now I'm going more of an herbal route. I'm putting more stock in herbs than in vegetables and diet. I maintained a healthy low-carb diet throughout my LLMD treatment but kept worsening anyway.

My plan is to do Buhner's core protocol from Healing Lyme, but I'm DIY'ing some of the extracts so it'll be 2-3 months before I start.

Here's a breakdown of the core protocol:

• Polygonum cuspidatum (often sold as resveratrol) - endothelial protection
  
  
• Salvia miltiorrhiza (red sage) - cytokine remodulation
  
  
• Scutellaria baicalensis (baical skullcap) - cytokine remodulation
  
  
• Gelatin - collagen protection
  
  
• Vitamin C - collagen protection
  
  
• Selenium - collagen protection
  
  
• Uncaria tomentosa (cat's claw) - immune remodulation
  
  
• Cordyceps - immune remodulation
  
  
• Withania somnifera (ashwagandha) - immune remodulation
  
  
• Eleutherococcus senticosus (eleuthero) - immune remodulation
  
  
• Glycyrrhiza (licorice) - immune remodulation
  
  
• Andrographis - antispirochetal
  
  
• Uncaria rhynchophylla - anti-inflammatory (especialy recommended for neuroborreliosis)
  
  You may notice that of this long list, only one item is actually killing Lyme bacteria. If you're interested in what he means by endothelial protection, cytokine remodulation, etc, I can expand on those.
  
  Since you're having so much trouble with your joints, you may want to try the collagen and endothelial protectors.
  
  Buhner also has additional protocols to target specific symptoms, including an expanded collagen support protocol. I don't have trouble with my joints, so I'm planning on doing the chronic fatigue protocol after I've incorporated all of the above.
  
  All of that is just what I'm planning to do, though. What I'm doing now is a mishmash of things that I got from a redditor:
  
  
• Monolaurin (nobody seems to really know how this works, but it is said to hit viruses, bacteria and fungi)
  
  
• A supplement called Candida Cleanse (caprylic acid, oregano, protease, cellulase, several other things)
  
  
• Cistus tea - biofilm buster
  
  
• Turmeric - anti-inflammatory
  
  
• Chlorella/spirulina - detox
  
  
• Milk thistle - detox
  
  
• Nanogreens - this is a blend of extracts of many vegetables, some fruits, and some herbs. I do it mostly for the nutrients but may help with detox
  
  
• Dry-brushing - detox
  
  I never had recognizable herxes from antibiotics, but am having them now, so I do think it's working. The monolaurin seems to be the worst herx trigger, and I'm increasing my dosage very gradually.
  
  I want to note that I don't just start taking all this stuff all at once. I add one thing in at a time, maybe once every 5-7 days, and I start at a low dose and work up unless the dose is just one capsule. Because if I have a bad reaction, I want to know what is causing it. I also carefully track when I start what, and when I increase my dosages (I was a scientist in my former life).
  
  So it will take a good bit of time to get fully on the Buhner protocol.
  
  As a side note, treating with DMSO kinda freaks me out, because I used to work with DMSO in the lab. I was highly aware that it could permeate my skin, bringing along whatever chemotherapy drug I was working with that day! But it makes perfect sense that it works as a topical carrier, and it's good to hear that it's helping you.

My public library has a rather robust LYME DISEASE section. I highly recommend starting there, as I always say "FREE IS FOR ME."

"Read this book to find out about the following breakthrough Lyme Disease treatments. Five Core Treatment Protocols: The Antibiotic Rotation Protocol, The Marshall Protocol, The Salt / Vitamin C Protocol, Detoxification, and Electromedicine (Rife Machine Therapy). Five Supportive Supplements: Systemic Enzymes, Mangosteen, Lithium Orotate, Coenzyme Q10, and Magnesium. This book is also very helpful for the family and friends of loved ones with Lyme disease."

https://www.amazon.com/Top-Lyme-Disease-Treatments-Conventional/dp/0976379716/ref=sr_1_1?s=books&ie=UTF8&qid=1519185136&sr=1-1&keywords=lyme+top+10+treatments

This is a great place to start before you have a chance to see a doctor: this doctor named Bill Rawls used the Buhner protocol to get himself better, and now sells his own herbal protocol called the Restore Kit. Read his book, buy the restore kit, and schedule and appointment with him on the vital plan website. This book is by far the best I've read about Lyme and associated diseases, and I've read many of them. Another good one is Dr. Horowitz's book "How Can I Get Better?"

https://www.amazon.com/Unlocking-Lyme-Practical-Solutions-Chronic/dp/0982322526/ref=sr_1_1?ie=UTF8&qid=1501890905&sr=8-1&keywords=dr+rawls+lyme

https://vitalplan.com/shop/restore-program?gclid=CP7z5NjjvtUCFRFYDQodNosG3w

I have used Flourish Probiotics by Eu Natural. These are actually probiotic supplements. i had a really bad case of stomach problems with nausea and lack of appetite. I was recommend this and did some research before deciding to go in for it. Basically, this is a natural combination of healthy bacteria that helps to support digestion, urinary tract and gut health. The brand Eu Natural is actually highly recommended when it comes to natural products. I will attach a link so you can read more into it. But definitely a go for me:
https://www.amazon.com/Flourish-Probiotics-Women-Lactobacillus-Saccharomyces/dp/B07KFPCCLP

Good luck

I hate to say this, but no Doctor is going to save you. As difficult as it is, your only hope is to be proactive as possible and learn as much as you can about this disease and what else is going on with your body.

9/10 Lyme is not the only reason you are sick. You'll never know the chicken or the egg but most people who aren't getting better have MSIDS, which is multi systemic infectious disease syndrome. Basically lyme pulled the last Jenga block and your immune system came crashing down. You need to learn about genetics mutations such as MTHFR, COMT, HLA etc and what they contribute to, learn the relation to mold toxicity, heavy metals, allergens and dietary issues, past viruses such as EBV/HV6.

It's a nightmare. I'm just telling you now, you can search for a doctor and you need to find one you trust. The biggest attribute of someone who can help you with his is to find someone willing to learn WITH YOU. Who doesn't think they know it all and has a thirst to figure this out. Check the ILADS site for recommendations.

Infectious Disease doctor won't be your answer. I wish it were that easy but I would bet on it. It's up to you now.

Look into MSIDS and Dr. Horowitz's explanation on why you aren't getting better.

I don't make anything off of this so I'm not trying to sell you anything but if you haven't read this book, you need to. Get your mom to read it as well.
Asap. why you aren't getting better

I will also add that Calms magnesium powder in tea is amazing and puts me to sleep much of the time. Alka-seltzer Gold, aspirin and naproxen have helped with migraines and inflammation, but to a much lesser extent than the cannabis, so I haven't even thought of using those again since I started this regimen. I also recommend one of those personal saunas, relaxes my muscles and warms up my constantly cold feet. Baths with epsom salt an help.

you want everything we know? I have a giant notepad full of info...

• Find a LLMD:
  https://www.ilads.org/patient-care/provider-search
  
  https://www.lymedisease.org/members/lyme-disease-doctors/
  
  
• You had a Western Blot done with various positive bands? Congrats, it's probably Lyme even though they told you it was "negative for Lyme."
  
• Get Igenex testing done. Yes it's expensive. You know what else is expensive? Wasting $$$ on useless brain MRIs that the neurologist orders for you every year.
  
• No, you probably never even saw the tick bite, most of us didn't
  
• Oh you had a tick bite? Congrats, you have Lyme
  
• No, 10 days of doxy is NOT enough. Go get more. You need at least a month.
  
• Barely anyone gets a bullseye rash. I read a statistic that said only 17% of people get it. If you got one — congrats, you have Lyme.
  
• There are ticks in cities -- you can get Lyme walking through Central Park.
  
• Not everyone gets joint pain (I had neuro symptoms for 7 years before I had joint pain)
  
• Yes, it can cause psych symptoms, deja vu, anger, anxiety, depression, and depersonalization. No, you're not crazy.
  
• No, it's not just stress. Stress doesn't make your arm go numb during a heat wave.
  
• Alcohol intolerance is a very important early symptom. Very few other things cause this (Hodgkins lymphoma?)
  
• Don't go to a neurologist, rheumatologist, the Mayo Clinic, or an infectious disease doctor, they will not help you, they will likely just lie to you
  
• No, it's not "chronic fatigue" or "fibromyalgia" or any other bullshit diagnosis they try to give you
  
• Yes, Lyme can cause every bizarre weirdo fucking symptom you can think of (vibrating sensation, feeling of water running down your leg, spasticity, can’t remember words)
  
• Lyme can go dormant for years
  
• If you have Multiple Sclerosis you probably really have Lyme
  
• Ignore the salt/vitamin c guy who posts here
  
• Yes, there is Lyme and ticks in every state. That one too. Yes, mosquitos carry it too
  
• Info on co-infections (Babesia, Bartonella, Ehrlichia, Mycoplasma, Anaplasmosis, Rocky Mountain Spotted Fever), aka it's probably not just Lyme. Ticks have over 100 different types of bacteria, with new ones being discovered every year. There are even different types of Borrelia burgdorferi depending on what part of the country you're in. There are 29 strains of Bartonella alone.
  
• Clean up your diet: Keto or Paleo may help. Give up gluten, dairy, sugar, and processed foods. Borrelia feeds off of sugar.
  
• Some people heal with just herbs (Buhner or Cowden protocol)
  
• Why do I feel like I'm dying when I take antibiotics or herbs? Herxheimer reaction
  
• It's Lyme singular, NOT "Lymes"
  
  TREATMENT:
  
  
  BUHNER PROTOCOL:
  
  https://www.healingwell.com/community/default.aspx?f=30&m=4127022
  
  http://buhnerhealinglyme.com
  
  https://techpost.io/hacking-chronic-lyme-disease-and-co-infections/
  
  
  
  Disulfiram
  (new treatment that not many LLMD’s are using):
  
  https://www.lymedisease.org/disulfiram-kinderlehrer/
  
  https://clinicaltrials.gov/ct2/show/NCT03891667
  
  https://recruit.cumc.columbia.edu/clinical_trial/1661
  
  There’s a private Facebook group too
  
  
  COWDEN:
  (need links)
  
  
  BLOODWORK INFO:
  
  
• Western Blot - aka “what the hell are bands?” https://www.healingwell.com/community/default.aspx?f=30&m=4147204
  
• Igenex
  
• Armin Labs - Germany
  
• DNA Connections
  
• Galaxy Diagnostics - specifically for Bartonella testing https://www.galaxydx.com
  
• CD-57 for immune response (need a link/info for this)
  
  Lyme-specific bands: 23, 31, 34, 39 and 83/93
  
  BARTONELLA:
  
  https://youtu.be/uYEHsRRxrQw
  
  http://www.townsendletter.com/July2015/bartonellosis0715.html
  
  BOOKS:
  
  Stephen Buhner, Healing Lyme
  
  https://www.amazon.com/Healing-Lyme-Borreliosis-Coinfections-Rickettsiosis/dp/0970869649/ref=sr_1_2?keywords=Buhner+healing+lyme&qid=1567635287&s=gateway&sr=8-2
  
  Stephen Buhner, Healing Lyme Co-Infections
  https://www.amazon.com/gp/product/1620550083/ref=ox_sc_saved_title_5?smid=ATVPDKIKX0DER&psc=1
  
  Unlocking Lyme
  https://www.amazon.com/gp/product/0982322526/ref=ox_sc_saved_title_4?smid=ATVPDKIKX0DER&psc=1
  
  Why Can’t I Get Better?
  https://www.amazon.com/s?k=Buhner+healing+lyme&ref=nb_sb_noss_2
  
  Cure Unknown
  https://www.amazon.com/gp/product/1250044561/ref=ox_sc_saved_title_6?smid=ATVPDKIKX0DER&psc=1
  
  Believe Me - Yolanda Hadid (celebrity)
  https://www.amazon.com/Believe-Me-Invisible-Disability-Disease/dp/1250132770/ref=sr_1_1?keywords=lyme+yolanda&qid=1567635346&s=gateway&sr=8-1
  
  Bitten
  
  https://www.amazon.com/Bitten-History-Disease-Biological-Weapons/dp/006289627X/ref=pd_sbs_14_9?_encoding=UTF8&pd_rd_i=006289627X&pd_rd_r=2275bf65-9f9d-4e9d-bd21-f907c727b622&pd_rd_w=FyN0V&pd_rd_wg=yhka3&pf_rd_p=1c11b7ff-9ffb-4ba6-8036-be1b0afa79bb&pf_rd_r=2GVJQT1XQ2PXA4R98XYH&psc=1&refRID=2GVJQT1XQ2PXA4R98XYH
  
  ARTICLES:
  
  https://www.elephantjournal.com/2016/04/i-survived-lyme-disease-and-you-will-too/
  
  https://globallymealliance.org/marisol-thomas-existing-with-late-state-neurological-lyme-disease/
  
  https://affairsofliving.com/blog/2010/12/9/my-lyme-disease-is-not-the-idsa-lyme-disease.html
  
  https://www.theatlantic.com/magazine/archive/2019/09/life-with-lyme/594736/
  
  https://www.lymedisease.org/mylymedata-catherine-fox/
  
  https://blogs.scientificamerican.com/observations/its-time-to-get-serious-about-tick-borne-diseases/
  
  https://folks.pillpack.com/the-worst-thing-about-lyme-disease-is-what-it-does-to-your-mind/
  
  https://www.huffpost.com/entry/what-lyme-disease-feels-like_b_7539130
  
  https://www.huffpost.com/entry/its-a-scandal--daryl-hall_b_11118332
  
  SYMPTOM LISTS:
  
  https://canlyme.com/lyme-basics/symptoms/
  
  https://www.prohealth.com/library/a-deep-look-at-the-symptoms-of-six-major-lyme-related-infections-41139
  
  https://www.lymedisease.org/lyme-disease-symptom-checklist/
  
  DOCUMENTARIES:
  
  
• Under Our Skin
  https://underourskin.com
  
  
• Heal (Netflix) - not specifically about Lyme, but informative and gives you hope
  
  
• The Paleo Way (Netflix only has season 2) - this is just a really good cooking show about the Paleo diet and health
  
  
  DETOX METHODS:
  
  https://www.tiredoflyme.com/detox-methods.html
  
  http://www.ladyoflyme.com/blog/burbur-drops-lyme-detox
  
  https://affairsofliving.com/blog/2010/7/5/helpful-hints-for-battling-a-herxheimer-reaction-or-my-adven.html
  
  Binders:
  
  https://alisonvickery.com.au/binders/
  
  
• activated charcoal (take on an empty stomach and 1-2 hours from meds)
  
• citrus pectin
  
• Zeolite
  
• bentonite clay (food grade)
  
  Make the body alkaline:
  
  
• lemon water
  
• Alka Selter Gold tabs (I have to get these on amazon, can’t find them in stores)
  
  Detox baths and sweating (20-30min):
  
  
• dry brush the skin before baths (brush twds the heart)
  
• epsom salt (3 cups) and peroxide (16 ounces)
  
• epsom salt (1-3 cups) and bentonite clay (1/2 cup)
  
• infrared sauna 5-30min
  
  For headaches and histamine reaction:
  
  
• Benadryl
  
  Brain/nerve detox:
  
  
• Burbur and Pinella detox
  
• Jernigan Neuro-Antitox https://www.jnutra.com/products/neuro-antitox-ii-cns-pns?variant=18838316810336
  
• L-Ornithine (gets rid of excess ammonia)
  
  HEALING:
  
  
• Meditation
  
  • https://youtu.be/jK2hS40pr-g
    
  • https://youtu.be/RCCeEXs-6Nc
    
• Vagus nerve stimulation
  
  • https://darouwellness.com/the-vagus-nerve-how-inflammation-can-be-controlled-by-the-brain/?fbclid=IwAR2lePixdHcMDg0lgQXlhsEr16C-vQbd4nCqcFSOmzHrBodsI5KdX545s7c
    
  • https://drarielleschwartz.com/natural-vagus-nerve-stimulation-dr-arielle-schwartz/#.XY4vsS3MzOQ
    
  • https://drarielleschwartz.com/vagus-nerve-yoga-dr-arielle-schwartz/#.XY5f6i3MzOQ
    
  • https://drprincetta.com/tag/humming/
    
  • https://www.optimallivingdynamics.com/blog/how-to-stimulate-your-vagus-nerve-for-better-mental-health-brain-vns-ways-treatment-activate-natural-foods-depression-anxiety-stress-heart-rate-variability-yoga-massage-vagal-tone-dysfunction
    
  • https://me-pedia.org/wiki/File:Cranial_Nerves.png
    
  • https://me-pedia.org/wiki/Vagus_nerve_infection_hypothesis
    
  • http://simmaronresearch.com/2013/12/one-theory-explain-vagus-nerve-infection-chronic-fatigue-syndrome/
    
• ASMR (this helps my nerve pain, I know it’s weird) https://youtu.be/xyW5HZIj7ZE
  
• Yoga https://youtu.be/Ba0fweKUwIc
  
• Nature (hmm… maybe go to the ocean, not the woods)
  
• Exercise
  
• Laughter
  
• Neuroplasticity (need books, links)
  
• Positivity
  
• Music or Art
  
  SUCCESS STORIES:
  
  
  https://www.healingwell.com/community/default.aspx?f=30&m=3683338
  
  HOPE:
  
  https://www.outsideonline.com/2402641/kirby-morrill-appalachian-trail-stabbing
  
  https://www.runnersworld.com/news/a28677255/jeannie-rice-half-marathon-age-group-world-record/
  
  
  THE GODFATHER OF LYME:
  
  
  Dr. Joseph Burrascano
  
  https://vimeo.com/306846706
  
  https://www.lymedisease.org/history-lyme-disease-burrascano/
  
  https://holisticprimarycare.net/topics/topics-a-g/chronic-disease/1184-shape-shifters-hidden-accomplices-a-natures-dirty-needles-confronting-the-challenges-of-lyme-disease-sp-858975690.html
  
  https://lymediseaseassociation.org/about-lyme/medical/treatment-guidelines/
  
  Dr Horowitz
  
  https://vimeo.com/channels/ldnresearchtrust/359020273
  
  says Lyme can be transmitted from mother to fetus
  
  “Lyme causes psych symptoms”
  
  Dr Armin Schwarzbach - German Lyme specialist at Armin Labs
  
  https://vimeo.com/channels/ldnresearchtrust/113603875
  
  He says “Multiple Sclerosis is just a collection of symptoms, and Lyme bacteria can be the cause of it.”

It’s not.

Met plenty of people who caught it and treated early. Some who even had the tick and got it tested. They still ended up chronic even after multiple rounds of antibiotics. Myself included.

Once Lyme forms biofilms and goes into hiding all bets are off. As time passes Lyme seems to be evolving to become more antibiotic resistant as well.

Then there is the persister cells that need to be wiped out. Standard antibiotics are showing poor efficacy against them. Many doctors are turning to other antimicrobial drugs including antimalarial and leprosy medications.

https://rawlsmd.com/health-articles/understanding-biofilm

https://www.lymedisease.org/lyme-sci-why-persister-cells-matter-with-lyme-disease/

https://www.americanintegrative.com/using-dapsone-in-the-treatment-of-chronic-lyme-disease/

One of the researchers who helped create Lyme disease confessed shortly before his death that it was breed in a bioweapons research program for the US government. It was designed and selectively bread to evade easy testing and treatment in the 50-60’s. Now that it’s escaped the lab it’s evolved to become even more treatment resistant and “catching it early” is not at all a guarantee of easy treatment.

Catching it early merely gives you a fighting chance to put it into remission before it can do a lot of damage. That’s about it. Most antibiotics will put it into remission but won’t necessarily wipe out all the biofilms and persister cells. So the disease waits until conditions are right and then reproduces and reinfects the person. Relapses can happen months or years after successful antibiotic treatment. That’s why we don’t really refer to people being cured but merely in remission. It’s because the disease often comes back later when you’re not expecting it.

This is unfortunately the truth and you can read more about it from a Stanford medical writer in her book based on freedom of information documents from the US government as well as the personal notes and documents of one of the researchers: https://www.amazon.com/Bitten-History-Disease-Biological-Weapons/dp/006289627X

If you're sensitive to antibiotics, look up Nutramedix on amazon. Very inexpensive relative to other treatments and many have told me they've seen good improvement with their products. I'm starting treatment with them today and am very excited. They say to only have one drop initially because the Herxheimer reaction is very strong for these meds.

Banderol/Samento combination is supposed to be very effective.

See:

banderol

samento

pinella

burbur

http://www.amazon.com/Nutramedix-NutraMedix-Samento-Microbial-Defense/dp/B001EXSQAS/ref=sr_1_1?ie=UTF8&qid=1410422332&sr=8-1&keywords=samento

http://www.amazon.com/NutraMedix-Banderol-Microbial-Defense-30/dp/B00CBYELPI/ref=sr_1_1?ie=UTF8&qid=1410422600&sr=8-1&keywords=banderol

Here are the top two natural treatments that I have come across that are raved about in the lyme community. Obviously do some research of your own but the reviews on the bottom of the page should speak loudly to their effectiveness. Good luck. Time is of the essence, so get an apt with a LLMD.

There was a Russian doctor who made the case the fiber in our diets isn't the panacea it's been made out to be and wrote a book. I haven't read it, but have read some of his online comments and he makes some good points. I think the fiber = good thing simply got popularized without much scrutiny as these things often do and the media took off with it. My diet is high in fats (butter especially), animal fats in particular, eggs, fish, meat and veggies with some carbs and almost no sugars. My weight is proportional to my height with a BMI of 24.4.

https://www.amazon.com/Fiber-Menace-Constipation-Hemorrhoids-Ulcerative/dp/0970679645

Looks like Methyl protect has a lot of B Vitamins, which can definitely give those symptoms. My doc put me on these...

https://www.amazon.com/Pure-Encapsulations-N-Multivitamin-Hypoallergenic/dp/B00CBYG1L0

The herbs are Colloidal Silver and Skullcap. Then I've been taking this stuff called Cholestoff that is supposed to help remove the lyme toxins from my body. I feel like that has worked the best. Perhaps I killed the lyme from all of the antibiotics / antimalarials, and then these herbs have been removing the toxins from my system lessoning the symptoms. At least that's what my Naturalpath says. I went to her to test if I might have mold sensitivities which were causing my symptoms to be worse. The tests she ran told me that my body wasn't able to remove the lyme toxins properly, thus causing the symptoms to remain even if the Lyme and co-infections may be gone. Please take this with a grain of salt. I'm not 100% sold on the science behind this method, (Shoemaker protocol) but like I said, I exhausted my run with antibiotics and this has seemed to have helped.

Also look into Stephen Buhner's Healing Lyme book. Or you can look it up online. I've also been taking some supplements from his regimen, specifically Cat's Claw, which is supposed to help with the joint pain. The Buhner protocol seems to help a lot of people and I've seen it recommended on r/lyme before, but I haven't tried it out completely myself. Let me know if you have any questions.

Was she ever on antibiotics for the lyme?

I would recommend epsom salt baths and an infrared sauna. You can buy a home one for like $140. It helps tremendously with that "poison in the blood" feeling and other detox issues.

https://www.amazon.com/Radiant-Saunas-Rejuvinator-Portable-Personal/dp/B00MX19M9E/ref=asc_df_B00MX19M9E/?tag=hyprod-20&linkCode=df0&hvadid=167151535350&hvpos=1o1&hvnetw=g&hvrand=12222919221939401729&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=9002576&hvtargid=pla-275506914121&psc=1

Where do you guys live?

Radiant Saunas BSA6310 Rejuvenator Portable Sauna https://www.amazon.com/dp/B00MX19M9E/ref=cm_sw_r_cp_api_1WS3xb0KGHBMQ

You seem to have inadvertently used an Amazon referral link (probably from whatever search interface you used) and reddit has removed the comment as spam.

Please replace the link with the non-referral version: http://www.amazon.com/dp/1893910245/ and let me know so I can re-approve the comment!

Here is the book that kicked off this whole investigation:

https://smile.amazon.com/Bitten-History-Disease-Biological-Weapons/dp/006289627X?sa-no-redirect=1

Here is the Rep Chris Smith(Republican-NJ) calling for the investigation in the H.R. 2500 meeting.
https://www.youtube.com/watch?v=FIR-uyIoqJI&feature=youtu.be&t=8366

Here is Kris Newby - author of the book: https://twitter.com/krisnewby
She is a science writer at Stanford School of Medicine

Here is the mobile version of your link

On the topic of Kaiser, they are literally the worst. Fun fact: even President Nixon was aware HMO-based health care like Kaiser was a complete money making scam. Source

The reason you got laughed at is Lyme Disease is not endemic to California. Borrelia burgdorferi is absolutely everywhere but as usual the medical system is 20 years behind the research. Ticks ride around on deer, birds and most importantly, humans. I personally think the theory that Lyme only comes from a tick bite is absurd. The "science" does not support that theory yet but its only a matter of time.

Regarding Nazis coming to America after WWII, this was called Operation Paperclip and is documented fact. Source

Now the question is were they developing biological weapons on Plum Island and was this the origination of Lyme Disease? For that I point you to this book which details the story of Plum Island.

Search this subreddit for Plum for some additional threads on this topic. Happy researching.

Yes, you could still have Lyme or a related tick-borne illness.

On your Western Blot, did you test positive on any bands? If so, which ones? If your doctor is following the CDC criteria to interpret the results, it's very possible that you still could have Lyme, but not meet the full criteria required for a positive diagnosis.

If you really believe it's Lyme (or a similar infection) but your test results are negative, I would strongly encourage you to have a full panel done by a reliable lab such as IGeneX and to see an infectious disease or functional medicine doctor that specializes in Lyme and related illnesses.

To educate yourself until you see another doctor, I'd recommend beginning to read 'Why Can't I Get Better? Solving the Mystery of Lyme and Chronic Disease' http://www.amazon.com/Better-Solving-Mystery-Chronic-Disease/dp/1250019400

If you think there's something wrong, don't give up. Persist. I let my symptoms go for years before they finally diagnosed me, which is the biggest regret of my life.

Also, keep in mind that you may not have Lyme, but another type of illness, so don't get too fixated on one thing.