Top products from r/Sjogrens
We found 23 product mentions on r/Sjogrens. We ranked the 20 resulting products by number of redditors who mentioned them. Here are the top 20.
1. Life Extension Peony Immune 600 mg 60 Vegetarian Capsules
Sentiment score: 1
Number of reviews: 1
Helps maintain immune system balancePromotes a healthy and balanced inflammatory responseStandardized extract of active white peony root compoundsExtracts from white peony root used for immune balance in China for 1,200 years
2. Sea Buckthorn Oil Blend Omega 7 Complete Supplement 100% Organic Vegan Capsule (120)
Sentiment score: 1
Number of reviews: 1
✅✅✅PREMIUM QUALITY: Sea Buckthorn can nearly be classified as the “perfect” oil given its intensely rich nutritional content – Vitamins A, B1, B2, C and E, Carotenoids, Flavonoids, Amino Acids, Phenols, Folic Acid and other organic acids.✅✅✅PLANT-BASED COMPLETE OMEGA: Omega 3 6 7 a...
3. Hycosan Night
Sentiment score: 0
Number of reviews: 1
Direct Replacement for VitaPos OintmentVitamin A added for added Ocular healingOintmentPreservative FreePart of the award winning Hycosan range
4. Refresh Optive Mega-3 Lubricant Eye Drops, 30 Single-Use Containers, 0.01 Fl Oz, 30 Count
Sentiment score: 1
Number of reviews: 1
Treats the signs and symptoms of dry eye associated with Meibomian Gland Dysfunction (MGD)Only artificial tear with a blend of natural oils - flaxseed and castor oilsNatural oils work to fortify and restore the lipid layer, helping prevent tear evaporationNourishes and protects all three layers of t...
5. Axon Optics COVER-RX Migraine Relief For Light Sensitivity - Fits Over Standard Eyeglasses
Sentiment score: 0
Number of reviews: 1
CLINICALLY PROVEN RESULTS - Axon Optics is the original manufacturer and innovator of migraine relief glasses. They have been successfully used in a top Neuro-Ophthalmology Clinic for over 20 years.QUALITY LENSES & ANTI-GLARE COATINGS - Axon Optics lenses are the same high quality you'd expect from ...
6. Quartz Silicone Hydrating Sleep Mask for Nighttime Dry Eye Relief (Clear)
Sentiment score: 0
Number of reviews: 1
Recommended for dry eye relief at night, use with CPAP and air travelGently shelters eyes from drafts and low humidity environments while creating a moisture rich environmentSoft and flexible, the shield is made from medical grade silicone and designed to rest inside the orbital bonesLightweight and...
7. Best Choice Products 99-Level Pivotal Vibration Platform w/Resistance Bands, Remote Control, Compact Design
Sentiment score: 1
Number of reviews: 1
Produces extreme rapid muscle contractions with little effort to help tone the body and relieve tense musclesFeatures 99 levels to adjust workout intensity with a convenient remote control and includes resistance bands to activate the upper bodyPivotal or triangular oscillating vibration prevents he...
8. AOR, Mag Malate Renew, Supports a Healthy Heart, Muscle Function and Energy, Magnesium Supplement, 120 servings (120 capsules)
Sentiment score: 1
Number of reviews: 1
ESSENTIAL MAGNESIUM: Our supplement combines magnesium and malic acid to support optimal muscle function, heart health and energy levelsSUPPORTS MUSCLE FUNCTION: Helps relieve muscle cramping as well as promoting strong bones, nerve function and cardiovascular healthONE CAPSULE: Taken daily with foo...
9. Vulva Balm Cream - Vaginal Moisturizer - Organic & Natural - Intimate Skin Cream - Estrogen Free Treatment - Helps Reduce Vaginal Dryness & Itching - Vulva Harmony
Sentiment score: 1
Number of reviews: 1
MOISTURIZING NATURAL & ORGANIC INGREDIENTS: The highest quality organic, natural and vitamin enriched ingredients have been utilized to create this internationally praised vaginal moisturizer.REPLENISHES & REJUVENATES: Our vaginal cream is specially formulated to soothe, moisturize and help relieve ...
10. Vaseline Lip Therapy Cocoa Butter.25 oz (Pack of 4)
Sentiment score: 0
Number of reviews: 1
Instantly softens and soothes dry lips.Locks in moisture so lips feel better over timeMade with pure petroleum jelly and rich cocoa butter.For soft, glowing lips
11. Hashimoto's Protocol: A 90-Day Plan for Reversing Thyroid Symptoms and Getting Your Life Back
Sentiment score: -1
Number of reviews: 1
HARPER ONE
12. Mint Flavored Toothpicks 200ct
Sentiment score: 0
Number of reviews: 1
These are quality double-pointed white birch toothpicks (approx. 2 5/8" in length)Refreshing and potent -- long-lasting mint flavor in every toothpickOne resealable package contains approx. 200 mint toothpicksAll natural -- made with oils of peppermint, spearmint, mentholSugar free
13. Solaray Sea Buckthorn - 600 mg - 100 Vegetarian Capsules
Sentiment score: 1
Number of reviews: 1
Solaray - Sea Buckthorn Berry, Veg cap (btl-Plastic) 600 mg 100 ctSolaray076280137996Brand New and Sealed
14. Spry Xylitol Mints, Cinnamon, 240 Count - Breath Mints That Promote Oral Health, Increase Saliva Production, and Stop Bad Breath
Sentiment score: 1
Number of reviews: 1
SUGAR FREE: Instead of corn syrup or sugar our mints are made with 100% xylitol. Xylitol sweetener is derived from the fibrous parts of plants, similar in taste to regular organic sugar. We use no filler, flow agents or other sugar additives. Xylitol is a natural sugar that tastes just like real sug...
15. OraCoat XyliMelts Dry Mouth Relief Moisturizing Oral Adhering Discs Mild Mint with Xylitol, for Dry Mouth, Stimulates Saliva, Non-Acidic, Day and Night Use, Time Release for up to 8 Hours, 40 Count
Sentiment score: 0
Number of reviews: 1
Patented technology: continuous slow-release formula. Molecules penetrate directly into blood streamNon-acidic: XyliMelts are the only dry mouth gel pH buffered to the best range for the mouth, pH 9Lasting: can be used day or night and can last 4-8 hours between applications (results may vary).Great...
16. Head and Shoulders Clinical Strength Dandruff and Seborrheic Dermatitis Shamp (Pack of 2)
Sentiment score: -1
Number of reviews: 1
Head & Shoulders Clinical Strength anti-dandruff and anti-seborrheic dermatitis shampoo fights the toughest flakes#1 Dermatologist recommended dandruff brand (based on a 2013 survey of U.S. dermatologists)Contains 1% selenium sulfide to provide effective relief for the toughest dandruffMaximum stren...
17. Prince of Peace Instant Ginger Honey Crystals
Sentiment score: 0
Number of reviews: 1
Makes a hot or cold beverageA premium line of teasPrince of Peace
19. XyliMelts for Dry Mouth, Mint-Free, 80-Count Box
Sentiment score: 0
Number of reviews: 1
Rated Most Effective by Dentists, Clinicians Report March 2016* (Full report available at oracoat.com)Adhering discs for use while sleeping and daytimeCoats, moisturizes and lubricates. Gluten freeIncreases saliva reducing sleep disruption caused by dry mouthMay reduce risk of tooth decay
20. NOW Supplements, Panax Ginseng 500 mg, 250 Capsules
Sentiment score: -1
Number of reviews: 1
the roots of Panax plants have been valued in Chinese herbalism for their invigorating, adaptogenic, and tonic properties.As a result of its long history of use, Panax Ginseng has been studied extensively by modern scientists and it has been found to possess hundreds of compounds, including ginsenos...
Thank you!
That tea sounds interesting, I'll look into it. I drink a ton but that doesn't help at all... I've been chewing tons of gums but didn't think of xylitol ones.
Omega 3s are important in autoimmune disease, as is reducing the amount of omega 6s (vegetable oils, basically) as they have the opposite effect to omega 3s - they promote inflammation. I've dropped vegetable oils pretty much, and have started to take 1000 mg of omega 3 daily (maybe it's 1500 actually), as I ate zero omega 3s for years and tons of omega 6s.
https://www.ncbi.nlm.nih.gov/pubmed/12442909
I might also start taking white peony as I've read it helps people with autoimmune disease, and read a post from someone with Sjogren's who had big improvement on it
https://www.amazon.com/Life-Extension-Immune-Vegetarian-Capsules/dp/B00GDLWZH6/ref=cm_cr_arp_d_product_top?ie=UTF8
It's an immunomudolator, there are other herbs that work this way apparently, I haven't researched it yet.
As for dry mucous membranes in general, sea buckthorn is apparently helpful - I just found a study yesterday where they tested its efectiveness in women with vaginal drynes who had sjogren's and it worked. The full stody is behind a paywall but they mention its results in another one that tried to see if it'd work for another group fo women
https://www.sciencedirect.com/science/article/pii/S0378512214002394#bib0055
>Sea buckthorn (Hippophaë rhamnoides) oil has in the Central Asia traditionally been used for the treatment of inflammations in the genital organs and uterus [6]. Intake of sea buckthorn (SB) oil produced with a supercritical carbon dioxide extraction process has in clinical studies shown beneficial effects on serum lipids and lipoproteins [7], dry eye [8], markers of endothelial inflammation [9], and platelet aggregation [10]. In a double-blind, randomized, cross-over study in women suffering from Sjögren's syndrome, SB oil relieved the dryness-associated symptoms of genital mucous membranes [11].
from what I've read, you should take oil from the fruit as opposed to seeds for dry mucosa, although it seems like in this study (and therefore I'm assuming the Sjogren's one too) they used a combination of the two. I've scrolled through reviews of various sea buckthorn products on amazon and it seems like people use it for Sjogren's with success.
Have you considered any dietary changes to see if that may help? I say this with full understanding of how hard it can be, I have been cutting things out/experimenting with what works best for my various autoimmune conditions for the last 5 years.
I have been on an elimination diet called the Autoimmune Protocol for over a year now. I think cutting out all grains and soy is the best thing I’ve ever done for my health.
I also take a medication called cevemeline to increase tear and saliva production and it helps tremendously! I added a sea buckthorn oil supplement and it does seem to help, along with lots of preservative-free eye drops. My doctor recommends those because they have the added flax seed oil to help lubricate the eyes naturally.
I hope you find something that works for you, this disease is the worst! Sending big hugs <3
I just started taking it for vaginal dryness...we’ll see if it helps! I sure hope so. Mouth and eye dryness have been easier for me to treat than that. I’ve basically stopped having sex, because it’s a huge chore and requires a TON of lubrication and is still painful with that. Sorry, TMI haha. If the sea buckthorn helps even a little, that’ll be great.
Eta: This is the one I’m taking. I hope it’s the right kind!
Sea Buckthorn Oil Blend, Omega-7 100% Organic Vegan Capsule, 120 Softgels https://www.amazon.com/dp/B07RYNY2CM/ref=cm_sw_r_cp_api_i_-dWyDb0SGC10C
Yes, this is what I take: Solaray Sea Buckthorn
I take two in the morning and two at night.
I also want to add - good fats in general also help, so like I take fish oil supplements, use coconut and olive oils, eat avocados. I found that finding dietary triggers helped with my symptoms over all. Paleo or AIP (auto immune protocol) are diets that people find helpful.
I struggled with eye pain at first but getting everything under control really helped. There's a great thread here: https://www.reddit.com/r/Sjogrens/comments/cdlvps/sjogrens_survival_supplies/
There's one at my work. I've had back surgery so i'm not sure if I'm supposed to use it or not, but I did stand on it and do squats one day. Kinda interesting. the science looks good.
Amazon has the same brand we have at work for about $140. I'd just spend a little time looking at reviews on amazon, really.
Hey, in case you're interested, I can give a personal review now...
https://www.amazon.com/Vulva-Balm-Cream-Moisturizer-Treatment/dp/B01BVZAQLK
I just got this a few days ago and it's amazing. No lubricant has helped me this much. It contains Sea Buckthorn oil too, among other things. You can't use it with condoms though, just a heads up. Oil can damage latex. For everyday use it's really great though.
https://www.amazon.com/Advanced-Orthomolecular-Research-Energizing-Gluten-Free/dp/B01BWAJW8M
Good luck 😉
Xylitol is a sugar alcohol that is recommended by dentists as its not damaging to your teeth. It also happens to promote salivary gland production. One thing to note is that it is absolutely TOXIC to pets, so keep it out of their reach at all times.
These are the ones I use. I keep them in my purse in a little pill pocket thingy.
you could try honeyed ginger crystals! they are also basically black magic for nausea. i get them at a local asian market. you just mix it in hot water for tea or cold water for a nice refreshing drink. here is a link; http://www.amazon.com/Instant-Ginger-Honey-Crystals-Pack/dp/B002SWB73C
I have an ointment that I use at night which is hella soothing. Unlike the ones sold here, it doesn't have petroleum in it. I order mine from the UK, and it takes about 2 weeks to get to me.
Hycosan Night https://www.amazon.com/dp/B078J1T49Y/ref=cm_sw_r_cp_tai_3PA2Db05FEABD
It lasts a really long time, and most days (when I remember to use it) I find I don't need drops until mid day.
Edited to add: I also started taking double doses of fish oil, which started helping after about a week. And my joint pain lessened some. It's not gone, and I need to take NSAIDs most days. But now it's like once or twice a day instead of all day long.
Let's see here it is on Amazon for 1.99. Here is the recap.
Step 1. Do not use chapstick. I find it only helps for a short period of time. I stead use Vaseline lip therapy. It's sticky and gooey but it's the only one that works long term and it doesn't create an addiction (yes, chapstick does that) https://www.amazon.com/dp/B00H8BNEFW/ref=cm_sw_r_cp_apa_rHeYzbB43X219
I have not tried anything like this. But there are 35 reviews for this product on Amazon Quartz Silicone Shield for Nighttime Shelter https://www.amazon.com/dp/B01IIFF29M/ref=cm_sw_r_cp_api_vcaAybW3D9CSD
They seem to work in general as long as the pair fits you properly.
This is the mint flavor link
https://www.amazon.com/Axon-Optics-COVER-RX-Migraine-Sensitivity/dp/B01JQYGNGA/
I will not go into most stores without. Makes a massive difference.
Gotten to the point were spouse will bring them if I forget.
Fl-41 is the lens type.
Sorry for the late reply. Managed to write a long one and got it dissapear by clicking from a wrong button. Fun times.
I don't think there is a miracle pill or a doctor that will guide to you to the right direction. You have to change your life by yourself and try out different things that work for different people. Keto and lifestyle change might be a big thing, ordering few of those herbs that I suggested might be even bigger. All of these different things might not work but you won't be able to find it out if you don't try out. You are the one having to make the change though. There is no one else making it for you. I just wish that someone had said about the alternative choices before to me or that they've would have told me at my rheumatoid clinic that they don't actually have medicine to get my fatigue fade away...or that the fatigue is actually big part of the Sjögren's
Here is a few links to amazon.com:
http://www.amazon.com/s/ref=nb_sb_ss_i_0_11?url=search-alias%3Daps&amp;field-keywords=ashwagandha&amp;sprefix=ashwagandha%2Caps%2C817&amp;rh=i%3Aaps%2Ck%3Aashwagandha&amp;ajr=2
http://www.amazon.com/Foods-Panax-Ginseng-Capsules-500mg/dp/B0013OXFF4/ref=sr_1_1?ie=UTF8&amp;qid=1411922038&amp;sr=8-1&amp;keywords=panax+ginseng
These two cost less than 0.10 capsule.
I'm sorry if I sound harsh but English is not my native and in Finland we usually prefer to go to straight to the point. Sorry. edit:
And I'm sorry for you to hear just now different ways to manage your sickness and not 4 years ago...