Top products from r/autoimmunity

Hey sorry your feeling lousy :( ive been on a journey myself with brain fog. Long story not so long, I refused plaquenil while on cellcept (to help save my kidneys). I've been to holistic doctors too. My remedies are to eat a lot of bone broth bowls with veggies, and take the proper supplements to feed your body the nutrients it needs. Diet and supplements are vital imo to long term health. Here's what I take now and my Brian fog is long gone:

--Morning

--I start with shake containing:

--Orgain meal powder - amazon

--Orgain superfood powder - amazon

                --garden of life perfect food powder (used to take this a lot, but transitioned to the orgain superfood powder) - amazon

--Flax Seed (store) or Gerbs super seed blend (flax, pumpkin, chia, etc) - amazon

--I then take(these are available at Amazon, locally, or swansonvitamins.com):

--acai/ginger/turmeric blend

--omega 3, helps with heart/blood

--PQQ, helps with mitochondrial repair

--CoQ10, helps heart

--L-Glutamine, helps a bunch of stuff

--glutathione

--Vitamin D

--Vitamin C

--msm

--natto serra (https://www.amazon.com/Doctors-Best-Natto-Serra-Non-GMO-Gluten/dp/B00DBEVTDE/ref=sr_1_3_a_it?ie=UTF8&qid=1534181176&sr=8-3&keywords=natto+serra)

--Sulforaphane from Broccoli Sprout Extract

--cognitex with brain shield

--l-lysine

--circumin complex

--spirulina/astaxan

--magnesium/calcium/zinc

--monolaurin (take on occasion)

--Lunch

--multivitamin with no iron

--flaxseed oil caps.

--reserveratol

--alpha lipoic acid

--acai/ginger/turmeric

--ginger root

--enzymes

--lung essentials

--olive leaf extract

--dhea

--milk thistle

--berberine

--swanson Dynamic Balance Blend Soil-Based Organisms

--fenugreek

--plant sterols

--Dinner

--betaine hcl (only on days with heavy meats)

I know how you feel, I also think I have an undiagnosed autoimmune disease, either MS or IC. When all you want to do is get on with your life, discovering you're ill can be incredibly frustrating and depressing.

What really helps is having goals, and the right state of mind. First and foremost, always remember that worrying and stress makes EVERYTHING worse. No matter how bad things get, do your best to accept the situation you're in and keep moving forward, striving to be a better and healthier person every day. As for goals, have you tried the autoimmune protocol? I had great success in curing my Lichen Sclerosus with the AIP, and there's really not much to it, it just takes some getting used to. Simply avoid all processed foods, and stick to fresh grass-fed meat, fish, vegetables, fruit and healthy fats. Try and understand the science behind autoimmunity and how to manage it best, I strongly reccommend this book as a guide:
http://www.amazon.co.uk/Paleo-Approach-The-Sarah-Ballantyne/dp/1936608391

Also, try not to lose any sleep, sleep is absolutely vital for recovery, as well as maintaining a positive mental attitude. Many people have had miraculous transformations with their health simply by avoiding certain foods and living a certain lifestyle. You may have to make a lot of sacrifices, but it's really worth it to get your life back. I've given up eating all nightshade vegetables, dairy, gluten, grains and refined sugars. I don't even know what autoimmune disease I might have, but the solution is the same regardless - a healthy and balanced lifestyle. Feel free to PM me if you need anything, there's lots of us going through the same thing!

Many of those symptoms can be complications of the autoimmune aspect of Hashimoto's thyroiditis. If you'd like to learn more read Dr. Kharrazian's 'Why do I still have thyroid symptoms?' book and find yourself a 'functional medicine doctor.' Might also want to check out the facebook group 'hashimoto's 411' ... all of your symptoms are very treatable.

Women with Celiac disease have an increased likelihood of developing another autoimmune condition. And, in Celiac in general, the gastrointestinal lining -- if never properly healed -- can cause more and more problems.... nutritional deficiencies, neurotransmitter dysfunction, immune system imbalance, etc etc etc

Please check out these resources and start learnin' :) The person that will care most about your health is YOU!


--http://www.amazon.com/Still-Thyroid-Symptoms-Tests-Normal/dp/0985690402/ref=sr_1_1?ie=UTF8&qid=1409582816&sr=8-1&keywords=why+do+i+still+have+thyroid+symptoms+when+my+lab+tests+are+normal
--https://www.functionalmedicine.org
-- and/or find a naturopath (ND) that specializes in autoimmunity and functional medicine

https://www.youtube.com/watch?v=p6CMso14NWk&t=0s&list=PLXZaIMUAAWuAQUBJfkKdMx9AFtpxrGPY_&index=5

​

It was just a colon cleanse that I found on Amazon. Nothing special. This is the link for that:

https://www.amazon.com/gp/product/B00ISAPPLI/ref=oh_aui_search_detailpage?ie=UTF8&psc=1

I don't recommend taking this often as it gets rid of a lot of good nutrients that we need. I've taken this twice this year. Both times I was feeling amazing.

Straws are really useful for this :) and if you're worried about hot tea you can buy metal or thick plastic straws. the rigid/sturdy kind. Something like this might be good

Stay strong! you've got this!

I get the the mouth ulcers (also on tongue and in my throat). The most effective thing I’ve found for me is OraCoat B12 Melts. They adhere to your mouth and slowly dissolve/release the medication. I’ve slept with them in and never had an issue. If I start using them as soon as I feel a sore starting, I might only need 4-6 of them. For bigger or multiple sores, I often use the whole box. I put them as close to the sore (or worst sore) as possible. I can’t find them locally, but amazon has them.

https://www.amazon.com/Oracoat-Melts-Mouth-Sores-Count/dp/B00KR0JADQ/ref=mp_s_a_1_4?keywords=hb12&qid=1559168750&s=gateway&sr=8-4

I hope you can find some relief

Japanese milk products:

https://www.amazon.com/TABINO-YADO-Springs-Assortment-Packets/dp/B000V2EXL4/ref=mp_s_a_1_3?keywords=japanese+milk+bath&qid=1571616768&sprefix=japanese+milk&sr=8-3

Feminine care:

https://www.target.com/p/lunapads-performa-mini-regular-black-washable-pad-1ct/-/A-51078651

https://queenvlife.com/products/queen-v-essentials-kit?utm_expid=.A8yqXByfTROAorBbhx9ZtA.0&utm_referrer=https%3A%2F%2Fqueenvlife.com%2Fcollections%2Four-products

In the past year I've started having tons of strange symptoms, including alopecia and Sjogren's-like symptoms, which I'm fairly confident are autoimmune, although I was seronegative for everything, including Sjogren's, on an autoimmune panel.

At the beginning, I did have sores in my mouth, and I think that's largely because I was sleeping with my mouth open. Eventually, my mouth was so dry that if it opened at night, the inside of my mouth would hurt and it would wake me up, and I was also worried about tooth decay, gum recession, and vocal damage. Some things that have helped me keep my mouth closed at night are these nasal strips and this sinus rinse a couple hours before bed if I notice a stuffy nose. I used to prop my head up with pillows, although I no longer need to. When my symptoms were worse, I also used this mouthwash. During the day, the dryness was irritating, which just forced me to keep my mouth closed unless I was exercising.

Keep an eye on the teeth and gums around the opening of your mouth. For me, it's mostly the bottom front teeth, and I notice that I just need to make sure I floss often. My singing voice is also declining, but I don't really know what to do about that.

I haven't been able to get anything helpful out of the doctors I've seen, but I've been able to make improvements with diet. I track all of my lifestyle factors closely in a spreadsheet and analyze the data in python. I highly recommend tracking your symptoms, diet, sleep, exercise, supplements, and anything else you think might have an effect. I'm starting a group for people with autoimmune or undiagnosed diseases to talk about what's helped and hurt them, data analysis, doctors, etc. PM me if you're interested, and anyone else who reads this, feel free to PM me as well.

Just alcohol can do it - I thought it was hops at first for me - but it's the alcohol. Does older meat affect you more than fresher meat? Like meat eaten at a restaurant or leftovers from last night. Chocolate is high in histamine. Tea is also tricky. I've figured out the kinds I can get away with. Dairy like yogurt, sour cream, cheese, or just plain milk? I think egg whites are supposed to be high in histamine. I seem to be ok with eggs but I don't eat them daily either. Can't eat strawberries but I can eat blueberries (now). I don't eat meat (cooked at home) that's more than about 48 hours old. When making food to be put in the freezer for later (like a big batch of soup) it's always frozen before the 48 hour mark. Tomato, vinegar, and fish are the biggest things that are ingredients in lots of things that I avoid. (I'm working on adding fish back into my diet from specific sources only.)

I take antihistamines, quercetin (started recently), and watch my diet. It's tricky, frustrating, and sometimes really hard. Other times it's not much of an issue. Stress throws everything off. I'm actually on a lot of meds for other issues too. I can't really eat out anymore. I miss a lot of things because people like to do FOOD + activity.

This book has been life changing. That sounds dumb or melodramatic or like I'm selling something, but it's just true.

Try an elimination diet to see if you can isolate any food culprits. I haven't done a challenge phase (the one time I did a total elimination diet for 3 weeks was around the holidays, and I rushed back into more "normal" eating without challenging) but I notice I feel better the less dairy and wheat I get.

It's rare, but you could also be sensitive to nightshades like tomatoes, potatoes, and eggplant. With such severe digestion issues you might have sensitivities to more than one food.

Also Google "anti-inflammatory diet" along with "elimination diet." This was the anti-inflammatory diet and recipe book I checked out from the library when I found out I had lupus.

I'm slightly ashamed — intellectually, that is — that the elimination diet I followed was Alejandro Junger's trendy Clean. The book is full of a lot of hokum mixed in with some sound science on inflammation and stuff. However, the elimination diet is legit, and I've seen that most elimination diets take a similar format. Here's the food list in PDF form.

In fact, I follow the elimination diet about 85 percent of the time right now. When I lower that percentage I feel crappy. And give me some cheese or ice cream and blech!

I occasionally had them as a kid while growing up but now notice I tend to only get a small canker sore or two right after having a lot of sinus drainage from my bad allergies+sinusitis. I found the small tubes of painkilling gels helpful when they got really bothersome as a kid but I’ve since discovered Orajel has a mouthwash now that seems to really help prevent the pain from getting too bad in the 1st place while helping heal up a little faster (& maybe prevent them with more regular use, I only need it for a day or 2 when I have a sore now).

Maybe worth a shot if you haven’t tried it: https://www.amazon.com/Orajel-Antiseptic-Mouth-Sore-Rinse/dp/B00I5MOVQO