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It's tough to predict how everything is going to happen as it is so variable from person to person. From my experience, I would say to not let the diagnosis hang over your family like a dark cloud. Treat her like you normally would treat her (maybe a little extra nice). I do not mean to scare you, but try and spend as much quality time with her as you can, cause you never know when things can turn poor.

Another thing I would recommend is to read some books on it. There are plenty of choices at most libraries (depending on the size of your town of course). I enjoyed this one, as it answered some FAQs about brain tumours, and had perspectives from both clinicians and patients. :https://www.amazon.ca/Questions-Answers-About-Brain-Tumors-ebook/dp/B003K15EWA

My loved one had this diagnosis and they had a pretty good quality of life until close to the end. Given that it is a tumour that affects the nervous system though, there are a variety of possible symptoms to expect. If you have any specific questions at any time, feel free to message me and I can share my experiences and give advice the best I can.

Thank you so much for responding!!! I really appreciate it! And I'm glad to hear that you did very well immediately after your surgery.

So, just to sum up:

• In the hospital: nice pillows, soft sweaters, earbuds and music, medication tracker sheet, lattes and other comfort food? Were there foods that you would strongly recommend against?
  
• At home: wedge shaped pillow, bendy straws, elastogel ice helmet (or some kind of helmet for migraines), scarves and hats? Thank you for the ice helmet tip, I think I will buy the Headache Hat (the Elastogel ice helmet is not sold in my country). Are there any other products that you think would be helpful? Any specific type of painkillers? Any house/furniture setup that might be helpful (i.e. would an angled armchair be useful?)
  
• Other important things: being silly, enthusiastic and cheering her up if needed
  
  And can I ask, if you don't mind, what are the headaches and cognitive stuff you dealt with that prevented you from going back to work? Do you feel the quality of your life has drastically suffered? If you were in this situation (a bit older, with children in their early 20s, very little family/social support), what long-term advice would you give to your kid?

The standard of care has a 25% 2 year survival rate according to my wife's neuro oncologist. My wife is 26 months out from her initial diagnosis and surgery, she's had a second surgery for a recurrence last January and is currently having Avastin infusions which seem to be working. Here is a site that has a document that summarizes the current treatment options and other approaches:

https://www.virtualtrials.com/noteworth.cfm

I highly recommend Ben Williams document Treatment Options For Malignant Gliomas - Aug 2017 Update.

It is found on this page:

https://www.virtualtrials.com/williams.cfm

I just finished reading Dr. Williams book about his glioblastoma survival:

"Surviving Terminal Cancer: Clinical Trials, Drug Cocktails, and Other Treatments Your Oncologist Won't Tell You About"

https://www.amazon.com/gp/product/B00FDWPQWC/ref=dbs_a_def_rwt_hsch_vapi_tkin_p1_i0

He has some good criticisms of the standard medical approach. His ideas of throwing everything practical at fighting the tumor seems logical. I'm trying to get my wife to add to all the non medical supplements and things she takes, in addition to the Avastin.

There apparently is a film related to this work, I haven't seen it yet, but it looks interesting.

https://www.thebraintumourcharity.org/brain-tumour-diagnosis-treatment/resources/surviving-terminal-cancer-film/

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Best of luck to you, don't rely on the statistical predictions and fight your own fight.

My father-in-law has stage 4 GBM and he really seems to like electronic football. Brought back lots of good memories for him.

http://www.amazon.com/Mattel-Classic-Football-Handheld-Game/dp/B00005BULI

No problem.

You can see more here:

http://cronaxal.com/



It's also sold as benegene.

https://www.amazon.com/Advanced-Orthomolecular-Research-AOR-Benagene/dp/B004VEKL3M/ref=sr_1_1_s_it?s=hpc&ie=UTF8&qid=1496617106&sr=1-1&keywords=benaGene&th=1

I can completely relate, I used to program in my high school years, but now I own a detailing shop and have employees and other families at risk if I don't succeed. I highly recommend following the Butterscotch Shenanigans Podcast and watching their entire series. I watched it years ago and again after my diagnosis.

https://www.amazon.com/Clip-Dev-Diary/dp/B071RRDG74