Reddit reviews Endometriosis : The Complete Reference for Taking Charge of Your Health

Yes, the growths unfortunately spread and the spreading can cause more adhesions as well. Any bleeding from lesions can irritate, promote scar tissue and build more adhesions.

I went from one surgery where my doctor said my lesions were minimal, isolated to my uterus and my bowel. Only a few years later it had spread to my bladder, ovaries and I've grown extensive lesions attaching my bowel and uterus.

Keep in mind that the amount of growths and pain being experienced don't always correlate. Prostaglandins can play a huge role in how much pain we experience. Women with minimal lesions can experience excruciating pain while others can have extensive growth and damage and only feel a bit of discomfort.

If you're experiencing bladder symptoms you should speak with your doctor, it could just be a bladder infection. If it's not, make sure your symptoms are thoroughly investigated outside of endo. Interstitial Cystitis is fairly common in women with endo and treated differently.

That being said, I get bladder symptoms (burning, urgency, pain) that seem to be associated with when I have cysts. Bleeding and irritation then it calms down when the cyst is gone. It's been a few years of that and while it definitely varies, it hasn't gotten worse over all.

this article under programming genetic pathways has a description of how growths can grow and change, it's wording is a little intense but it's the best I could find atm. I highly recommend this book . It helped me when I was first diagnosed to get a baseline understanding before doing research on my own.