(Part 3) Top products from r/Lyme
We found 27 product mentions on r/Lyme. We ranked the 64 resulting products by number of redditors who mentioned them. Here are the products ranked 41-60. You can also go back to the previous section.
42. Cure Unknown: Inside the Lyme Epidemic (Revised Edition with New Chapter)
Sentiment score: 1
Number of reviews: 1
43. How Can I Get Better?: An Action Plan for Treating Resistant Lyme & Chronic Disease
Sentiment score: 4
Number of reviews: 1
44. Believe Me: My Battle with the Invisible Disability of Lyme Disease
Sentiment score: 1
Number of reviews: 1
46. Bite Me: How Lyme Disease Stole My Childhood, Made Me Crazy, and Almost Killed Me
Sentiment score: 2
Number of reviews: 1
CENTER STREET
47. The Salt/C Plus Protocol for Lyme Infection
Sentiment score: 1
Number of reviews: 1
48. Incurable Me: Why the Best Medical Research Does Not Make It into Clinical Practice
Sentiment score: 0
Number of reviews: 1
Skyhorse Publishing
49. Broccoli Seeds for Sprouting, 8 Ounce - Kosher, Bulk
Sentiment score: 0
Number of reviews: 1
High quality broccoli seeds that remain viable for up to 5 years if kept dry.High germination rate guaranteed. You can even grow the sprouts to full-sized broccoli.Broccoli sprouts are packed with antioxidants and are greatly beneficial for your health.The sprouts taste nice and are perfect for juic...
50. Healing Lyme Disease Coinfections: Complementary and Holistic Treatments for Bartonella and Mycoplasma
Sentiment score: 1
Number of reviews: 1
51. The Fifth Vital Sign: Master Your Cycles & Optimize Your Fertility
Sentiment score: -1
Number of reviews: 1
52. SweetLeaf Sweet Drops Liquid Stevia Sweetener, Vanilla Creme, 2 Ounce
Sentiment score: 1
Number of reviews: 1
Tasty and convenient way to flavor water, yogurt, oatmeal, smoothies, coffee, and much moreZero caloriesComes in a convenient dropper bottleRequires no waiting for the sweetener dissolve, making it perfect to take on the goAll naturalNatural flavors with sweet steviaOnly a penny per dropZero calorie...
53. Sodium Chloride USP Normal Salt 1000 Tablets 1 Gram
Sentiment score: 0
Number of reviews: 1
1000 tabletsSodium chloride tablets may be used to replace the sodium lost from the body and thereby return sodium chloride levels to normal.Sodium Chloride Tablets helps reverse the symptoms of sodium depletion.Sodium Chloride Tablets for the temporary symptomatic relief of the symptoms of Colds, H...
54. Uvex Skyper Blue Light Blocking Computer Glasses with SCT-Orange Lens (S1933X)
Sentiment score: 1
Number of reviews: 1
PROTECTS YOUR EYES: Orange Lens features Spectrum Control Technology (SCT) that absorbs 98% of blue light from laptops, computers & tablets, which helps prevent cataracts and macular degenerationREDUCES EYE FATIGUE: SCT-Orange lens reduces eye strain so you can work longer & more comfortably; also m...
55. NOW Supplements, L-Ornithine (L-Ornithine Hydrochloride) 500 mg, Amino Acid, 120 Veg Capsules
Sentiment score: 1
Number of reviews: 1
Ornithine is a non-essential amino acid that plays a central role in the urea cycle, functioning along with Arginine and Citrulline to rid the body of ammonia, a byproduct of protein metabolism.Ornithine can also be converted into other amino acids, such as citrulline, proline, and glutamate, as wel...
56. Stevia Whole Leaf Concentrate, 2fl Ounces (60ml) Bottles (Pack of 2)
Sentiment score: -1
Number of reviews: 1
Whole leaf concentrate liquidContains no alcohol or chemicalsGood for whole food/raw food dietHerbal, licorice flavorThick, dark liquid often used by diabetics
57. McCormick Fine Garlic Powder, 21 oz
Sentiment score: -2
Number of reviews: 1
McCormick Fine Garlic Powder always starts with fresh, whole garlicAdds rich, savory flavor to all your favorite family recipesFine garlic powder disperses completely into your sauces, marinade & soupsUse in taco fillings, chili, pasta sauce, meatloaf, mashed potatoes and moreLarger size container p...
59. NutraMedix Burbur Detox - May Help Resolve Herx-Like Reactions - Desmodium molliculum Leaf Extract Drops (1oz / 30ml)
Sentiment score: 0
Number of reviews: 1
CLEANSING SUPPORT - The Desmodium molliculum plant of South America may offer cleansing support.*PROPRIETARY WHOLE HERB EXTRACTION PROCESS - Highly bioavailable liquid for improved absorption. NutraMedix's unique enhancement process optimizes the whole herb for a more powerful broad-spectrum extract...
60. Great Lakes Gelatin, Collagen Hydrolysate, Unflavored Beef Protein, Kosher, 16 Oz Can
Sentiment score: 0
Number of reviews: 1
COLLAGEN HYDROLYSATE: Made of ONE simple ingredient, collagen is a dietary supplement with a beneficial combination of amino acids. At Great Lakes Gelatin Company, we believe that a healthy lifestyle and a balanced diet, including collagen, is the cornerstone to a life well livedHEALTH BENEFITS: Sup...
I am not actively treating lyme currently. I have done longterm antibiotics and haven't seen good results. Due to concerns about longterm abx and gut flora issues, I have decided to treat mold issues and detox first and then come back around to eliminating lyme. I am currently not on any pharmaceuticals.
Mold/ Mycotoxin Binders: I am on activated charcoal (Bulletproof activated charcoal) to help bind and excrete mycotoxins. I couldn't tolerate Cholestyramine (Compounded without aspartame), it made me very ill. I also cycle chlorella. I go slowly because personally, when I take binders, I feel very sick and get very weird mentally, especially in regards to anxiety.
I also couldn't tolerate welchol, which made me suicidal but after going off it I felt fine.
Other considerations:
-Moved out of a water damaged building
Supplements:
Other:
-Bluelight blocking glasses at night Heres some cheap ones: (https://www.amazon.com/Uvex-Blocking-Computer-SCT-Orange-S1933X/dp/B000USRG90)
-Clean diet, organic as much as possible, No gluten, low sugar, and I play around with dairy. Lots of grass fed beef and good veggies. (I was dairy free for a few years however when I eat it I feel fine.)
-Avoidance of conventional household products. Instead: Natural detergents, soaps, toothpaste, shampoo, etc... I do use conventional aluminum containing deodorant because I have some less than ideal odor if I don't.
-Air oasis filter to improve indoor air quality (bedroom)
-Water filter in shower, Reverse Osmosis filter to drink from. (Ideally, you'd have a whole house filter but I do not.)
-Exercise as tolerated. (I can only lift sometimes, I cannot tolerate cardio.) DO NOT overdo it.
Things I will try soon:
-More regular sun exposure
-epsom salt baths
-Alka seltzer gold (Helps alleviate detox and herxheimer symptoms in some people.)
-Actual sauna (Not infrared)
For more info on mold check out:
(Ritchie shoemakers site, not a huge fan of his personally, I disagree with a few things he says but still worth reading and learning what he has to say.)
The best article I have found: (Non-Shoemaker)
https://www.hindawi.com/journals/tswj/2013/767482/
I have summarized here but feel free to ask questions and I will go into further detail. Good luck to everyone in regaining health. Cheers.
Jordan Fisher Smith, one of the Lyme disease patients documented in Under Our Skin (a required film for Lymies!), is the only person who I am aware of who claims that he is “cured.” His treatment was long-term antibiotics, as well as Chinese acupuncture & herbs, supplements, a clean diet, exercise & proper sleep. Jordan’s struggle is partially described in a 2006 article for Backpacker—“Reality Bites: Lyme Disease”. In 2016 he said, “I was treated for 7-1/2 years and have been totally cured now for 8 years. There are others.”
Ally Hilfiger, designer Tommy Hilfiger’s daughter, wrote a (great!) book titled Bite Me, describing a nightmarish experience with Lyme that began in her childhood. She now refers to her health status not as “cured,” but instead, “managed.”
“Managed” is a term that resonates with me. I do not believe there is a cure for Lyme (if there were wouldn’t we know about it by now??), however I do know of people who find a “managed” place and are able live fulfilling lives. That is my goal, and I wish this for you too!
—————
FWD: The complexity of “managed” >>
💚 Thought I’d share something I just wrote to my sister. Sums up the reality that has unfolded in the past 6+ years while being treated for late-stage Lyme disease. As they say— take what you want and leave the rest:
“Oh ya there is definitely a ‘secondary lyme syndrome’ meaning lyme and/or lyme treatment will cause or enable other issues/ailments/diseases. It's a catch 22... like chemo, it can wreck you almost as much as the cancer. U just have to hope your immune system has been boosted enough after treatment to fight off anything new. Immune system will always be comprised tho because there is no ‘cure’ for lyme, the bacteria is always lurking even tho antibiotics can take care of a lot of it. U just have to try to eat clean, rest, no stress, take supplements, stay as healthy as possible so as not to allow the bacteria to take over again. Kind of like AIDS patients - they have to be really careful.”
So, there it is. Defend yourself against Lyme disease and if you suspect you have it, see a “lyme-literate doctor” to help nip it in the bud. 💚
I never asked you to keep it to yourself. I think sharing treatments is very valuable. All I was asking was to share more information about the treatment, where to find others using it, what risks to watch out for, etc. I had assumed you would have much more research on this than myself, and thought it would be valuable to patients.
I did some quick research myself:
There seems to be a guy who wrote a book on it and people reported success:
https://smile.amazon.com/Salt-Plus-Protocol-Lyme-Infection/dp/1463575483/
That same guy seems to have a website which links to a yahoo groups page with thousands of people in it.
I found this printout that has more details on a potential treatment and it makes an attempt to explain why it works, and what risks you have to watch out for:
https://www.connersclinic.com/wp-content/uploads/2015/09/Beating-Lyme-Section-4-PDF.pdf
But since I have never done it and only spent 5 minutes researching it, I have no idea which source is good, or if there are better places to learn more about it. I thought you may know more and that it would be valuable to share.
Lyme patients see so many different claims of cures it's hard to process. So in order for people to choose treatment plan over another it's very valuable to patients to show them information about a proposed treatment.
Many people who have successfully been treated for Lyme and associated diseases were in exactly the position at one point that you are in now. I personally tested negative for Lyme 4 times, and only started testing positive for it after several months of treatment and now consistently test positive. Serological testing for Lyme is very unreliable, and this is what makes diagnosis excruciatingly difficult.
You need to seek out an LLMD as soon as you can to get their opinion and begin treatment. Also, you need to continue to seek other diagnoses along the way to cover your bases. The symptoms of Lyme and associated diseases are very similar to a number of other chronic diseases, some of them serious like MS. So you have to make absolutely certain you don't have those. Most importantly, you need to learn about the various co-infections that ticks carry (e.g. Babesia, Bartonella, Anaplasmosis, and others) and make sure that you are covering your bases with those. I personally have both babesia and bartonella and they have been worse for me that Lyme has.
I recommend you buy this book called "How Can I Get Better?" by Dr. Richard Horowitz. This guy is a rockstar and is so good he has a seven year waitlist to see him. Buy it now so you can start learning about what you are dealing with - that's the only way to get better.
https://www.amazon.com/How-Can-Get-Better-Resistant/dp/1250070546/ref=sr_1_1?ie=UTF8&qid=1498154805&sr=8-1&keywords=how+can+i+get+better+horowitz
While you are figuring out you doctor situation, and who to see, there are also other treatment regimens that don't involve antibiotics that people have had some success with (but absolutely you NEED to see an LLMD and most likely get on antibiotics). These two regimens are the Cowden Protocol and the Buhner Protocol.
Check out the link below for the Cowden Protocol:
https://www.nutramedix.com/products/cowden-support-program
Check out this link for Buhner's Protocol:
http://buhnerhealinglyme.com/
Good luck and let us know if you have any questions at all
EDIT: Added some stuff
you want everything we know? I have a giant notepad full of info...
https://www.ilads.org/patient-care/provider-search
https://www.lymedisease.org/members/lyme-disease-doctors/
TREATMENT:
BUHNER PROTOCOL:
https://www.healingwell.com/community/default.aspx?f=30&m=4127022
http://buhnerhealinglyme.com
https://techpost.io/hacking-chronic-lyme-disease-and-co-infections/
Disulfiram
(new treatment that not many LLMD’s are using):
https://www.lymedisease.org/disulfiram-kinderlehrer/
https://clinicaltrials.gov/ct2/show/NCT03891667
https://recruit.cumc.columbia.edu/clinical_trial/1661
There’s a private Facebook group too
COWDEN:
(need links)
BLOODWORK INFO:
Lyme-specific bands: 23, 31, 34, 39 and 83/93
BARTONELLA:
https://youtu.be/uYEHsRRxrQw
http://www.townsendletter.com/July2015/bartonellosis0715.html
BOOKS:
Stephen Buhner, Healing Lyme
https://www.amazon.com/Healing-Lyme-Borreliosis-Coinfections-Rickettsiosis/dp/0970869649/ref=sr_1_2?keywords=Buhner+healing+lyme&qid=1567635287&s=gateway&sr=8-2
Stephen Buhner, Healing Lyme Co-Infections
https://www.amazon.com/gp/product/1620550083/ref=ox_sc_saved_title_5?smid=ATVPDKIKX0DER&psc=1
Unlocking Lyme
https://www.amazon.com/gp/product/0982322526/ref=ox_sc_saved_title_4?smid=ATVPDKIKX0DER&psc=1
Why Can’t I Get Better?
https://www.amazon.com/s?k=Buhner+healing+lyme&ref=nb_sb_noss_2
Cure Unknown
https://www.amazon.com/gp/product/1250044561/ref=ox_sc_saved_title_6?smid=ATVPDKIKX0DER&psc=1
Believe Me - Yolanda Hadid (celebrity)
https://www.amazon.com/Believe-Me-Invisible-Disability-Disease/dp/1250132770/ref=sr_1_1?keywords=lyme+yolanda&qid=1567635346&s=gateway&sr=8-1
Bitten
https://www.amazon.com/Bitten-History-Disease-Biological-Weapons/dp/006289627X/ref=pd_sbs_14_9?_encoding=UTF8&pd_rd_i=006289627X&pd_rd_r=2275bf65-9f9d-4e9d-bd21-f907c727b622&pd_rd_w=FyN0V&pd_rd_wg=yhka3&pf_rd_p=1c11b7ff-9ffb-4ba6-8036-be1b0afa79bb&pf_rd_r=2GVJQT1XQ2PXA4R98XYH&psc=1&refRID=2GVJQT1XQ2PXA4R98XYH
ARTICLES:
https://www.elephantjournal.com/2016/04/i-survived-lyme-disease-and-you-will-too/
https://globallymealliance.org/marisol-thomas-existing-with-late-state-neurological-lyme-disease/
https://affairsofliving.com/blog/2010/12/9/my-lyme-disease-is-not-the-idsa-lyme-disease.html
https://www.theatlantic.com/magazine/archive/2019/09/life-with-lyme/594736/
https://www.lymedisease.org/mylymedata-catherine-fox/
https://blogs.scientificamerican.com/observations/its-time-to-get-serious-about-tick-borne-diseases/
https://folks.pillpack.com/the-worst-thing-about-lyme-disease-is-what-it-does-to-your-mind/
https://www.huffpost.com/entry/what-lyme-disease-feels-like_b_7539130
https://www.huffpost.com/entry/its-a-scandal--daryl-hall_b_11118332
SYMPTOM LISTS:
https://canlyme.com/lyme-basics/symptoms/
https://www.prohealth.com/library/a-deep-look-at-the-symptoms-of-six-major-lyme-related-infections-41139
https://www.lymedisease.org/lyme-disease-symptom-checklist/
DOCUMENTARIES:
https://underourskin.com
DETOX METHODS:
https://www.tiredoflyme.com/detox-methods.html
http://www.ladyoflyme.com/blog/burbur-drops-lyme-detox
https://affairsofliving.com/blog/2010/7/5/helpful-hints-for-battling-a-herxheimer-reaction-or-my-adven.html
Binders:
https://alisonvickery.com.au/binders/
Make the body alkaline:
Detox baths and sweating (20-30min):
For headaches and histamine reaction:
Brain/nerve detox:
HEALING:
SUCCESS STORIES:
https://www.healingwell.com/community/default.aspx?f=30&m=3683338
HOPE:
https://www.outsideonline.com/2402641/kirby-morrill-appalachian-trail-stabbing
https://www.runnersworld.com/news/a28677255/jeannie-rice-half-marathon-age-group-world-record/
THE GODFATHER OF LYME:
Dr. Joseph Burrascano
https://vimeo.com/306846706
https://www.lymedisease.org/history-lyme-disease-burrascano/
https://holisticprimarycare.net/topics/topics-a-g/chronic-disease/1184-shape-shifters-hidden-accomplices-a-natures-dirty-needles-confronting-the-challenges-of-lyme-disease-sp-858975690.html
https://lymediseaseassociation.org/about-lyme/medical/treatment-guidelines/
Dr Horowitz
https://vimeo.com/channels/ldnresearchtrust/359020273
says Lyme can be transmitted from mother to fetus
“Lyme causes psych symptoms”
Dr Armin Schwarzbach - German Lyme specialist at Armin Labs
https://vimeo.com/channels/ldnresearchtrust/113603875
He says “Multiple Sclerosis is just a collection of symptoms, and Lyme bacteria can be the cause of it.”
> L-ornithine
Wow thank you for the fast reply and advice. So no wirey, partially awake nights anymore? Hopefully?
Edit: Also do you recommend I buy this one of 250 grams or this one of 500 mg (I would have to take a lot of them to reach 3000 mg)
Edit 2: Nevermind the 500 mg is actually a 1,500 mg dose :)
"This solutions book addresses over twenty areas in which biofilm infections harm everyone. The 38 plus solutions to about 25 disorders are clear, based on the best published research and almost all are ready for use now. This collection exists nowhere and cannot be found on the web.
No book has such a powerful research foundation, with vast clear images with a highly readable text that does not require a PhD, MD or master's degree in pure science. You simply need an interest."
https://www.amazon.com/Combating-Biofilms-Antibiotics-Antifungals-Infections/dp/0991142683/ref=sr_1_1?s=books&ie=UTF8&qid=1520722187&sr=1-1&keywords=biofilms+fail
I’ve never tried kratom.. maybe I should look into it. I do take stevia daily though. My favorite is the SweetLeaf vanilla creme one: SweetLeaf Sweet Drops Liquid Stevia Sweetener, Vanilla Creme, 2 Ounce
Check out burbur detox I would say it helps me and a ton of people swear by it
Can you share which one you order from Amazon? Any at a lower price? And do you think pink himalayan salt would work for adding to food? That's what I use and I supplement with iodine from kelp since it's almost absent in American diets.
Edit: this is the one and it's way priced real high
Ah you again.
Dr. Stoller uses the latest medical research in his medical practice. You can read all about it in his book (Incurable Me: Why the Best Medical Research Does Not Make It into Clinical Practice https://www.amazon.com/dp/1510707980/ref=cm_sw_r_cp_api_Pa4-Bb1YBW0QT). It’s because of him I am even functional enough to reply and write this. He’s arguably saved my life.
Are his methods conventional? Not at all. Do they work? Yes, many of them do because they’re backed by the latest clinical research.
When it comes to Lyme disease, he’s well researched and educated. He’s successfully treated people with Lyme disease for over 30+ years.
His opinions on vaccinations aren’t relevant to treating Lyme disease. With that said, I personally know people who have experienced health problems due to vaccines. One of my old clients son was disabled for many years by an HPV vaccine, and now requires blood pressure medications to function again. While I don’t know if vaccines can cause autism, I do know that there are sometimes negative side effects to vaccines.
In fact, a senator just died after receiving a flu vaccine that he himself was promoting. https://www.learntherisk.org/other/senator-dies-of-flu-shot/
Anyhow, I would much rather see a doctor who is suspicious of the current medical system and uses the latest medical research to treat patients then the dozens of doctors who misdiagnosed me and allowed my infections to become chronic and nearly killed me. Dr. Stoller saved my life, I can’t say that for any other doctor since childhood.
here
link
This book is a must-read in my opinion. It’s all the things we should have learned about our cycle but were never taught. It’ll teach you how to read your body to know when you are and aren’t fertile. The chapter on hormonal birth control and all of its deleterious effects is eye-opening and maddening. I’d use only non-hormonal methods of birth control.
I saw this elsewhere and there was some argument that any kind of sugar is bad for us so I'm assuming store bought is not good. Are they referring to
this kind in the article? Has anyone tried he stevia method or plan to?
I've long suspected that Eddie McSweegan's little novel "Deliberate Release" that he wrote while being paid to do nothing at the NIH as the Lyme Disease Program Manager was a veiled threat to his superiors when they suspended him. This was covered by 60 minutes years ago in a segment entitled "The Man With No Work". It's supposed to be a novel, but my guess is that this was McSweegan's pathetic passive-aggressive attempt to let the gov't know that if they tried to fire him, he'd become a whistle blower regarding the release of Borrelia burgdorferi.
I've had 2 Lyme blood tests done now and both came back negative. I am still convinced I have it as I pulled off 7 ticks from myself during fishing in summer of 2018 and am exhibiting every single symptom to a t. I am going for another test next Tuesday and can expect another 1-2 weeks for the results again. It started with joint pain which I thought was from years at the gym but seemed unusual as my joints in my finger and shoulder just wouldn't heal for months. I finally got hit by the worst headache of my life in December while being at the gym, I thought I was having a stroke, had a catscan and an mri and both look fine so no stroke. Now I have a daily headache and insane weakness which has caused me to stop working. My heart hurts at random intervals throughout the day and my muscles sometimes spasm. My eye vision has gotten worse for no reason except some sort of neurological issues. The most worrying part is when my hearth beats so hard that my stomach actually shakes. I also feel very sick for 1-3 hours every time I eat. I have however started taking a easily made tincture which has helped me extensively. Basically just 6 drops of stevia extract and a tablespoon of each of these just boiled in hot water twice a day.
https://www.amazon.com/gp/product/B00ASD2F8O/ref=ppx_yo_dt_b_asin_title_o00_s00?ie=UTF8&psc=1
https://www.amazon.com/gp/product/B0771TT7G7/ref=ppx_yo_dt_b_asin_title_o01_s00?ie=UTF8&psc=1
https://www.amazon.com/gp/product/B07H2M8L9Y/ref=ppx_yo_dt_b_asin_title_o01_s00?ie=UTF8&psc=1
https://www.amazon.com/gp/product/B0776YJL99/ref=ppx_yo_dt_b_asin_title_o01_s00?ie=UTF8&psc=1
https://www.amazon.com/gp/product/B01N52YPJP/ref=ox_sc_act_title_1?smid=A8MA32QEVO3GI&th=1
https://www.amazon.com/McCormick-Fine-Garlic-Powder-21/dp/B001PQOATU/ref=sr_1_4?keywords=garlic+powder&qid=1557707659&s=hpc&sr=1-4
I recommend giving it a try as these are all known for killing lyme disease quite efficiently, worst case scenario you're wrong and don't have lyme and will just have a bunch of extra spices laying around the house. For anyone that's not aware Lyme bacteria carry a toxin which gets released into your bloodstream when the bacteria's cell walls break when they die which will make you feel much worse as you're being poisoned as you get better. I've been using this for a week now and the improvement is significant even though I felt much worse for the first 5 days.