(Part 2) Best books about cancer according to redditors

Yes, the FDA remembers that, and completely ignores the thousands of people dying who could be saved by treatments the FDA has not yet approved. For example, the immunotherapy which is being used very successfully for melanoma also looks very promising for lung cancer, but the FDA hasn't approved it for lung cancer. Why?
We understand the safety issues because we've been using it for melanoma for years.

Source: The Death of Cancer by the former head of the National Cancer Institute. He's not a fan of the FDA at all. We used to have scientists at the NCI making decisions about cancer treatments and trials; now we have risk-averse bureaucrats at the FDA. It's seriously slowing down progress, and harming patients.

It's best to eat very little meat. I rarely eat red meat any more. Maybe once per month. Citation: Anticancer - A New Way of Life

Apparently for fertility, a paper says to watch out for "only busulfan and high doses of lomustine appeared to be directly linked to decreased fertility." but that 70% of women can have children by age 45 so it looks like you would be in the clear.

http://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(16)00086-3/abstract

https://www.amazon.com/Childhood-Leukemia-Families-Friends-Caregivers/dp/1941089054

It's tough to predict how everything is going to happen as it is so variable from person to person. From my experience, I would say to not let the diagnosis hang over your family like a dark cloud. Treat her like you normally would treat her (maybe a little extra nice). I do not mean to scare you, but try and spend as much quality time with her as you can, cause you never know when things can turn poor.

Another thing I would recommend is to read some books on it. There are plenty of choices at most libraries (depending on the size of your town of course). I enjoyed this one, as it answered some FAQs about brain tumours, and had perspectives from both clinicians and patients. :https://www.amazon.ca/Questions-Answers-About-Brain-Tumors-ebook/dp/B003K15EWA

My loved one had this diagnosis and they had a pretty good quality of life until close to the end. Given that it is a tumour that affects the nervous system though, there are a variety of possible symptoms to expect. If you have any specific questions at any time, feel free to message me and I can share my experiences and give advice the best I can.

Is she still in-patient? Physician rotation is usual for that.

I experienced similar delays in the first hospital I dealt with. My advice - find a better hospital. Moffit's a good choice afaik and from what I've heard.

Look at the best 1 or 2 cancer hospitals in your metro area that take her insurance. Moffit is supposed to be very good so that's probably a good choice.

US News publishes a listing of them of hospitals by area, I posted links to Miami and Tampa.

http://health.usnews.com/best-hospitals/area

http://health.usnews.com/best-hospitals/area/miami-fort-lauderdale-fl/cancer

http://health.usnews.com/best-hospitals/area/tampa-st-petersburg-fl

Having been misdiagnosed, and having it nearly kill me, I speak from experience. Insist on having care from the same doctor (for outpatient care, in patient is rotation, of course). I go to a teaching hospital and see the same doctor every appt. Doctors are not supposed to have fellows doing unsupervised care so they can go home early, they're supposed to mentor them. That was another bad sign in the first hospital.

You do not want a BMT unless you NEED it, I say this from personal experience it's hellish, and I was lucky enough to get autologous, thank God, not an allogenic transplant, which is much worse - where you have to worry about Graft Vs. Host. I was in the hospital for a month, I'm on a low-microbial diet until further notice (e.g. no outside food, no food that's not sealed), and I can't leave the house without the mask until the 90 day point. I can't be in crowds or take public transport or be around children (vaccines). I'm also sterile.

Additionally the big thing I'd recommend is that she pursue fertility preservation (freezing her eggs) now on the off chance she has to get a BMT, since it leaves you sterile.

http://www.amazon.com/Having-Children-After-Cancer-Treatment/dp/158761054X
http://www.fertilehope.org/financial-assistance/women_app_rev2012_FINAL.pdf

As you mentioned, there are indications of a hypothyroid condition even though she was tested and it came back normal. In an interview with Dr. David Derry http://www.thyroid-info.com/articles/david-derry.htm He states that based on his experience, he feels that Chronic Fatigue and Fibromyalgia are caused by low thyroid. He went on to write a book on breast cancer and Iodine: https://www.amazon.com/Breast-Cancer-Iodine-Prevent-Paperback/dp/B00QD9FDFY and this book actually touches quite a bit on Fibromyalgia symptoms.


It certainly is recommended to consult with an Iodine literate practitioner prior to starting. A list of them is here: http://www.breastcancerchoices.org/ipractitioners.html

My wife self administered the treatment, but only after doing a great deal of reading and she also benefits from being very analytical.

So this book (with outstanding reviews on Amazon) is wrong?
https://www.amazon.com/Promise-Low-Dose-Naltrexone-Therapy/dp/0786437154/ref=sr_1_2?ie=UTF8&qid=1501449366&sr=8-2&keywords=low+dose+naltrexone

AND this book (with outstanding reviews on Amazon) is wrong?

https://www.amazon.com/LDN-Book-Little-Known-Naltrexone-Revolutionize/dp/1603586644/ref=pd_bxgy_14_img_2?_encoding=UTF8&pd_rd_i=1603586644&pd_rd_r=871S8V3X9SXXRQ3N64HB&pd_rd_w=bAasu&pd_rd_wg=5zr6K&psc=1&refRID=871S8V3X9SXXRQ3N64HB

And the things that 1000's of people have said about low dose naltrexone are also wrong??

http://ldn.proboards.com/

You'll probably say this is meaningless...

http://www.ldnafricaaids.org/wp-content/uploads/2011/08/Traore-et-al-1.pdf

And this is meaningless too..

https://www.otcmarkets.com/edgar/GetFilingHtml?FilingID=11337422

All of your evidence proven wrong.

https://www.amazon.ca/Specter-Joan-Lowery-Nixon/dp/0613142675

On the contrary, qualified doctors around the world have confirmed what the Singers have said, and you can read their peer-reviewed studies together with 7 other peer-reviewed studies and other studies including a comprehensive historical analysis from ancient time to the present day, which show that there is a connection between breast binding garments and breast cancer, in a new 560 page book called "The Tyranny of the Bra".

Tyranny of the Bra book

It is written by an English historian and scientist, Fred Harding, who also debunks the only official study financed by the International Cancer Institute, the Fred Hutch Study of 2014, which was written by a student studying for her PhD and not a qualified doctor and endorsed by the American Cancer Society.

book:
Should I Be Tested for Cancer?: Maybe Not and Here’s Why, by H. Gilbert Welch (Amazon)

Nice cliffnotes but if anyone wants a more advanced guide here you go: https://www.amazon.com/dp/B0073V07HA/ref=cm_sw_r_cp_apa_nTxFxbH3AEKYM

Diesel and Gasoline Engine Exhausts and Some Nitroarenes (IARC Monographs on the Evaluation of the Carcinogenic Risks to Humans)

Johns Hopkins Patients' Guide to Cervical Cancer

Chemo: Secrets to Thriving: From someone who's been there.

One of the Cochrane doctors (no conflicts of interest) wrote a whole book about it

ETA: Mammography Screening: Truth, Lies and Controversy 1st Edition
by Peter Gotzsche

Tem uma certa dose de problemas nesses representantes farmaceuticos. Aqui fala um pouco sobre isso, mas lá nos EUA:

https://www.youtube.com/watch?v=YQZ2UeOTO3I

Aqui também fala um tanto do que a industria farmaceutica as vezes faz de errado para lucrar:

https://www.amazon.com/Overdosed-America-Promise-American-Medicine/dp/0061344761/ref=pd_sim_14_3?_encoding=UTF8&pd_rd_i=0061344761&pd_rd_r=YMY8NM2TFDNZBRHWZ3XE&pd_rd_w=jmobc&pd_rd_wg=435MA&psc=1&refRID=YMY8NM2TFDNZBRHWZ3XE

https://www.amazon.com/Truth-About-Drug-Companies-Deceive/dp/0375760946/ref=sr_1_1?ie=UTF8&qid=1526408466&sr=8-1&keywords=marcia+angell

https://www.amazon.com/800-Million-Pill-Truth-behind/dp/0520246705/ref=sr_1_1?s=books&ie=UTF8&qid=1526408769&sr=1-1&keywords=800+dollar+pill

https://www.amazon.com/Powerful-Medicines-Benefits-Risks-Prescription/dp/1400030781/ref=pd_sim_14_5?_encoding=UTF8&pd_rd_i=1400030781&pd_rd_r=84A2S32TVNRNT2A42VC8&pd_rd_w=PshrM&pd_rd_wg=m21Id&psc=1&refRID=84A2S32TVNRNT2A42VC8

E esse assunto é como o Mac_and_book falou, se você procurar se informar, tem um tanto de teoria da conspiração, e também tem um tanto verdade.

Continuing the theme of cancer biology for the layperson, I would recommend Jessica Wapner's The Philadelphia Chromosome: A Mutant Gene and the Quest to Cure Cancer at the Genetic Level, which I'm currently reading. "Emperor" is the better book, but that's because it's so excellently written. Wapner's book is good too.

Also, this!: http://www.amazon.com/Questions-Answers-About-Human-Papilloma/dp/0763781622/ref=pd_sim_sbs_b_2

https://www.amazon.com/Truth-about-Cancer-Treatment-Prevention/dp/1401952232/ref=sr_1_1?ie=UTF8&qid=1499986657&sr=8-1&keywords=the+truth+about+cancer

The Emperor of All Maladies by Siddhartha Mukherjee

The Immortal Life of Henrietta Lacks by Rebecca Skloot

p53: The Gene that Cracked the Cancer Code by Sue Armstrong


The Making of the Atomic Bomb by Richard Rhodes